1a_visit_1
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1a_visit_1 [2020/03/17 18:05] trynke |
1a_visit_1 [2025/02/05 14:49] (current) |
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| ====== Visit 1 of General Assessment 1A (Baseline) ====== | ====== Visit 1 of General Assessment 1A (Baseline) ====== | ||
| - | All [[start|Lifelines]] participants of 8 years and older participating in [[general assessments|general assessment]] [[1A]] ("Baseline") visited a [[location]] of their choice.\\ | + | All [[start|Lifelines]] participants of 8 years and older participating in [[general assessments|general assessment]] [[1A]] ("Baseline") visited a [[location]] of their choice. A trained physician's assistant performed the described measurements, according to the Standard Operating Procedure below.\\ |
| + | * NB: For the most part of [[1A]], the [[Pulmonary function test]] and [[Ruff Figural Fluency Test]] were performed in alternate weeks so that participants underwent only one of these two tests. \\ | ||
| + | * NNB: In case of temporary counter indications or technical/logistic problems, tests could be rescheduled for [[1A Visit 2]].\\ | ||
| - | ===== SOP for Visit 1 (Adults) ===== | + | ===== SOP (in brief) for Visit 1 of adult (18+) participants ===== |
| * Total duration: 70 minutes | * Total duration: 70 minutes | ||
| - | * Research assistants (= nurse practitioners) received the participants | + | * Retrieve the participant from the waiting room |
| - | * [[Informed Consent]] and basic personal information was checked | + | * Check [[informed Consent]] and basic personal information |
| - | * [[1A Questionnaire 1]] was taken in and checked (also during blood pressure measurement) | + | * Take in [[1A Questionnaire 1]] and check for completeness (also during blood pressure measurement) |
| - | * If participant is 65+ years old: [[Mini mental state examination|MMSE]] was performed | + | * If participant is 65+ years old: perform [[Mini mental state examination|MMSE]] |
| - | * All instruments were checked if ready for use | + | * In case of a low MMSE score or by choice of participant, a [[Proxy]] interview was performed |
| - | * The following measurements were done __in order__ according to their respective SOP’s: | + | * Check if all instruments are ready for use |
| + | * Perform the following measurements __in order__ according to their respective SOP’s: | ||
| - [[Anthropometry]] | - [[Anthropometry]] | ||
| - [[Blood pressure]] | - [[Blood pressure]] | ||
| - | - [[ECG]] | + | - [[ECG]] |
| - [[Pulmonary function test]] or [[Ruff Figural Fluency Test]] | - [[Pulmonary function test]] or [[Ruff Figural Fluency Test]] | ||
| - [[MINI neuropsychiatric interview]] | - [[MINI neuropsychiatric interview]] | ||
| - [[Skin autofluorescence]] | - [[Skin autofluorescence]] | ||
| * Possible changes in the order: | * Possible changes in the order: | ||
| - | * [[Blood pressure]] and [[ECG]] could be swapped | + | * [[Blood pressure]] and [[ECG]] may be swapped |
| - | * [[Pulmonary function test]] could be done after the [[MINI neuropsychiatric interview|MINI]] | + | * [[Pulmonary function test]] may be done after the [[MINI neuropsychiatric interview|MINI]] |
| - | * For the most part of [[1A]], the [[Pulmonary function test]] and [[Ruff Figural Fluency Test]] were performed in alternate weeks so that participants underwent only one of these two tests. | + | * Enter the information on the [[medication (ATC)|medication wrappers]] (if any) into the computer system |
| - | * In case of temporary counter indications of the participant or technical/logistic problems, the tests could be rescheduled for [[1A Visit 2]] | + | |
| - | ===== SOP for Visit 1 (Children) ===== | + | |
| + | ===== SOP (in brief) for Visit 1 of children (8-17) ===== | ||
| * Total duration: 60 min (plus 30-45 minutes for on-site [[1A Youth Questionnaire]]) | * Total duration: 60 min (plus 30-45 minutes for on-site [[1A Youth Questionnaire]]) | ||
| - | * Research assistants (= nurse practitioners) received the participants in a child-friendly manner | + | * Retrieve the [[children|child]] and its parent(s) from the (child-friendly) waiting room |
| * [[Informed Consent]] __must__ have been checked prior to the visit | * [[Informed Consent]] __must__ have been checked prior to the visit | ||
| - | * Basic personal information was checked | + | * Check basic personal information |
| - | * [[1A Birth Questionnaire]] and [[1A General Questionnaire]] were taken in (if not sent by mail, lost, or forgotten) | + | * Take in [[1A Birth Questionnaire]] and [[1A General Questionnaire]] (if not already sent by mail, lost, or forgotten) |
| - | * [[1A Behavior Questionnaire]] and [[1A Food Questionnaire]] were handed out to parents | + | * Hand out [[1A Behavior Questionnaire]] and [[1A Food Questionnaire]] |
| - | * All instruments were checked if ready for use | + | * Check if all instruments are ready for use |
| - | * The following measurements were done __in order__ according to their respective SOP’s: | + | * Perform the following measurements __in order__ according to their respective SOP’s: |
| - [[Anthropometry]] | - [[Anthropometry]] | ||
| - [[Blood pressure]] | - [[Blood pressure]] | ||
| - | - [[ECG]] | + | - [[ECG]] (13+ years old) |
| - | - [[Pulmonary function test]] or [[Ruff Figural Fluency Test]] | + | - [[Pulmonary function test]] |
| - | - [[MINI neuropsychiatric interview]] | + | * Instruct older children (13+) to fill in the digital [[1A Youth Questionnaire]] on site. |
| - | - [[Skin autofluorescence]] | + | |
| - | * Possible changes in the order: | + | |
| - | * [[Blood pressure]] and [[ECG]] could be swapped | + | |
| - | * [[Pulmonary function test]] could be done after the [[MINI neuropsychiatric interview|MINI]] | + | |
| - | * For the most part of [[1A]], the [[Pulmonary function test]] and [[Ruff Figural Fluency Test]] were performed in alternate weeks so that participants underwent only one of these two tests. | + | |
| - | * In case of temporary counter indications of the participant or technical/logistic problems, the tests could be rescheduled for [[1A Visit 2]] | + | |
| ===== Relation to other elements ===== | ===== Relation to other elements ===== | ||
| - | 1A Visit 1 was accompanied by [[1A Questionnaire 1]] which was filled in, on average, within xx days (+/- yy days) prior to visit 1.\\ | + | 1A Visit 1 was accompanied by [[1A Questionnaire 1]] which was filled in, on average, 21 days prior to visit 1.\\ |
| - | 1A Visit 1 was followed by [[1A Visit 2]] within, on average, 40 days. | + | 1A Visit 1 was followed by [[1A Visit 2]] after, on average, 40 days. |
| 1A Visit 1 is procedurally equivalent to [[2A Visit 1]] and [[3A Visit 1]]. The average time between 1A Visit 1 and 2A Visit 1 was 3 years and 11 months. | 1A Visit 1 is procedurally equivalent to [[2A Visit 1]] and [[3A Visit 1]]. The average time between 1A Visit 1 and 2A Visit 1 was 3 years and 11 months. | ||
1a_visit_1.1584464728.txt.gz · Last modified: 2025/02/05 14:49 (external edit)
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