autq
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| The Autistic Traits questionnaire is an [[additional assessments|additional assessment]] among adult [[cohort|Lifelines]] participants.\\ | The Autistic Traits questionnaire is an [[additional assessments|additional assessment]] among adult [[cohort|Lifelines]] participants.\\ | ||
| The digital questionnaire was developed at the initiative of the [[https://www.autismresearchcentre.com|Autism Research Center]] of Cambridge University (UK), in collaboration with the [[https://www.sarr.nl|Sarr (Parnassia group)]] in Rotterdam (NL).\\ | The digital questionnaire was developed at the initiative of the [[https://www.autismresearchcentre.com|Autism Research Center]] of Cambridge University (UK), in collaboration with the [[https://www.sarr.nl|Sarr (Parnassia group)]] in Rotterdam (NL).\\ | ||
| - | The questionnaire consists of the [[autism spectrum (AQ-10)|10-item]] adult version of the [[https://en.wikipedia.org/wiki/Autism-spectrum_quotient|Autism Spectrum Quotient]], plus some additional questions about participants' experience with [[informal care]] in general, and informal care of [[https://en.wikipedia.org/wiki/Autism_spectrum|autism spectrum disorder (ASD)]] patients in particular. | + | The questionnaire consists of the [[autism spectrum (AQ-10)|10-item]] adult version of the [[https://en.wikipedia.org/wiki/Autism-spectrum_quotient|Autism Spectrum Quotient]] (([[https://doi.org/10.1023/a:1005653411471|Baron-Cohen S, Wheelwright S, Skinner R, Martin J, Clubley E. The autism-spectrum quotient (AQ): evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians. J Autism Dev Disord. 2001 Feb;31(1):5-17. doi: 10.1023/a:1005653411471. Erratum in: J Autism Dev Disord 2001 Dec;31(6):603. PMID: 11439754]])), plus some additional questions about participants' experience with [[informal care]] in general, and informal care of [[https://en.wikipedia.org/wiki/Autism_spectrum|autism spectrum disorder (ASD)]] patients in particular. |
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| + | The Autistic Traits variables are available for use for all researchers and can be requested through the catalogue. | ||
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| + | When the AUTQ data has been used in your research, you will have to include the following reference: | ||
| + | * [[https://doi.org/10.1038/s41467-020-17794-1|Warrier, V., Greenberg, D.M., Weir, E. et al. Elevated rates of autism, other neurodevelopmental and psychiatric diagnoses, and autistic traits in transgender and gender-diverse individuals. Nat Commun 11, 3959 (2020). https://doi.org/10.1038/s41467-020-17794-1]] | ||
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| + | Specifically, when the AQ has been used in your research, you will have to include the following reference: | ||
| + | * [[https://10.1023/a:1005653411471|Baron-Cohen S, Wheelwright S, Skinner R, Martin J, Clubley E. The autism-spectrum quotient (AQ): evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians. J Autism Dev Disord. 2001 Feb;31(1):5-17. doi: 10.1023/a:1005653411471. Erratum in: J Autism Dev Disord 2001 Dec;31(6):603. PMID: 11439754.]] | ||
| ===== Protocol & response ===== | ===== Protocol & response ===== | ||
| - | The digital questionnaire was sent out between september and december 2019.\\ | + | The digital questionnaire was sent out between july and november 2019.\\ |
| - | ~110,000 adult Lifelines participants received the questionnaire, of which ~38,000 participants (35%) responded. | + | ~110,000 adult Lifelines participants received the questionnaire, of which ~39,000 participants (35%) responded. |
| ===== Variables ===== | ===== Variables ===== | ||
| The questionnaire consisted mainly of the [[Autism spectrum (AQ-10)|Autism Spectrum Quotient]].\\ | The questionnaire consisted mainly of the [[Autism spectrum (AQ-10)|Autism Spectrum Quotient]].\\ | ||
| - | In addition, non-binary [[sex & gender|gender]] was assessed.\\ | ||
| - | The following additional questions were asked about autism spectrum disorder: | + | The following additional questions were asked about Autism Spectrum Disorder: |
| - | | **Questions English** | **Questions Dutch** | **Code** | **Variable** | **Assessment** | **Age** | | + | | **Questions English** | **Questions Dutch** | **Code** | **Variable** | **Assessment** | **Age** | |
| - | | Are you diagnosed with autism? | Is bij u autisme vastgesteld? | autism_diagnosis_adu_q_2 | AUTISME11 | [[AUTQ]] | 18+ | | + | | Are you diagnosed with autism? | Is bij u autisme vastgesteld? | autism_diagnosis_adu_q_2 | AUTISME11 | [[AUTQ]] | 18+ | |
| - | | In what year where you diagnosed with autism? | In welk jaar is autisme bij u vastgesteld? | autism_diagnosis_adu_q_2_a | AUTISME12 | [[AUTQ]] | 18+ | | + | | In what year where you diagnosed with autism? | In welk jaar is autisme bij u vastgesteld? | autism_diagnosis_adu_q_2_a | AUTISME12 | [[AUTQ]] | 18+ | |
| - | | Do you have a biological first-degree relative who is diagnosed with autism? | Hebt u eerstegraads bloedverwanten (kinderen, ouders of broers/zussen) bij wie autisme is\\ vastgesteld? | autism_diagnosis_fam_q_1_a-e | AUTISME13A-E | [[AUTQ]] | 18+ | | + | | Do you have a biological first-degree relative (children, parents, siblings) who is diagnosed with autism? | Hebt u eerstegraads bloedverwanten (kinderen, ouders, broers/zussen) bij wie autisme is\\ vastgesteld? | autism_diagnosis_fam_q_1_a-e | AUTISME13A-E | [[AUTQ]] | 18+ | |
| - | Furthermore, some questions were asked about informal care, in addition to 2 basic [[informal care]] questions: | + | In addition, non-binary [[sex & gender|gender]] was assessed.\\ |
| - | + | Furthermore, some questions were asked about [[informal care]]. | |
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| + | ===== Publications ===== | ||
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| + | The following publications included results from AUTQ: | ||
| + | * Warrier, V. et al (2020). Elevated rates of autism, other neurodevelopmental and psychiatric diagnoses, and autistic traits in transgender and gender-diverse individuals. Nat Commun 11, 3959 | ||
| + | * Warreman E.B. et al. (2023) [[https://journals.sagepub.com/doi/10.1177/13623613231155324|Psychological, behavioural and biological factors associated with gastrointestinal symptoms in autistic adults and adults with autistic traits]]. Autism 27(7):2173-2186 | ||
| + | * Warreman E.B. et al. (2023) [[https://www.sciencedirect.com/science/article/pii/S2589537023003887?via%3Dihub|Psychological, behavioural, and physical aspects of caregiver strain in autism-caregivers: a cohort study]]. EClinicalMedicine 64:102211. | ||
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