cancer
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| cancer [2020/02/26 14:32] – adriaan | cancer [2025/12/04 14:29] (current) – simone | ||
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| ====== Cancer ====== | ====== Cancer ====== | ||
| - | [[start|Lifelines]] participants were asked the following questions about their experiences with cancer ([[sections|section]]: | + | [[start|Lifelines]] participants were asked the following questions about their experiences with cancer ([[sections|section]]: |
| + | The cancer variables and open text fields have been coded into [[cancer_types|secondary cancer type variables]] which are available for use.\\ | ||
| + | Note that it is possible to link Lifelines data to PALGA and IKNL cancer registries.\\ | ||
| + | Some statistics on the self-reported prevalence and incidence of cancer in the Lifelines [[cohort]] can be found [[cancer statistics|here]]. | ||
| - | | **Questions English** | + | | **Questions English** |
| - | | Do you have cancer or have you had cancer? | + | | Do you have cancer or have you had cancer? |
| - | | If you have (had) cancer, what type of cancer? | + | | What type of cancer? |
| - | | If you have (had) cancer, how old were you when you got cancer? | + | | How old were you when you got cancer? |
| - | | If you have had cancer, were you cured from cancer? | + | | Were you cured from cancer? / Do you have cancer |
| - | | Since what year do you have cancer? | Sinds welk jaartal kanker | + | | Cancer / Have you (had) one of the following chronic conditions? |
| - | | Cancer | + | | Cancer since year: / Have you (had) one of the following chronic conditions? |
| - | | Could you indicate which of the following health problems you have (had) since the last time you filled out this questionnaire? | + | | Type of cancer: |
| - | | Colon cancer | + | | Did the health problems listed below start since the last time you filled in the LifeLines questionnaire? |
| - | | Lung cancer | + | | Cancer |
| - | | Skin cancer | + | | Cancer type: |
| - | | Brain tumour | + | | Colon cancer |
| - | | Bone cancer | + | | Lung cancer |
| - | | Breast cancer | + | | Skin cancer |
| - | | Prostate cancer | + | | Brain tumour |
| - | | Other type of cancer: | + | | Bone cancer |
| + | | Breast cancer | ||
| + | | Prostate cancer | ||
| + | | Other type of cancer: | ||
| + | | Other type of cancer / what type of cancer? | ||
| + | | Have you ever received a diagnosis of skin cancer? | ||
| + | | Do you know which type of skin cancer you had? | Weet u welk type huidkanker u hebt gehad? / Hebt u ooit de diagnose huidkanker gekregen? | ||
| + | | Have you participated in the population screening for cervical cancer (smear test)? | ||
| + | | What was the result of your last screentest for cervical cancer? | ||
| + | | Have you participated in the population screening for breast cancer? | ||
| + | | What was the result of your last screentest for breast cancer? | ||
| + | | Have you participated in the population screening for colon cancer? | ||
| + | | What was the result of your last screentest for colon cancer? | ||
| - | A large subcohort of adult female participants answered more detailed questions on this topic in the context of an [[additional assessments|additional questionnaire]] on women' | ||
| - | | **Questions English** | ||
| - | | | Kanker/ Is er ooit één van de volgende aandoeningen bij u vastgesteld of hebt u onderstaande klachten? | ||
| - | | | Op welke leeftijd of in welk jaar werd kanker bij u vastgesteld of de klachten ten gevolge van deze ziekte? | ||
| - | | | Welke behandelingen hebt u gekregen om de kanker te bestrijden? | ||
| - | | | Chemotherapie | ||
| - | | | Operatie | ||
| - | | | Bestraling | ||
| - | | | Geen van bovenstaande | ||
| - | |||
| - | =====Cancer statistics===== | ||
| - | |||
| - | |||
| - | These statistics provide the frequency of the occurrence of certain cancers at baseline and during the following three points of measurement (1B, 2A and 2B). As can be seen above, at baseline participants were asked whether they have or had cancer. For the follow-up assessments, | ||
| - | |||
| - | |**Type** | ||
| - | | | **1A** |** 1B** | **1C** | **2A** | | ||
| - | | Skin cancer | 2593 | 288 | 199 | 404 | | ||
| - | | Breast cancer | 1344 | 168 | 136 | 171 | | ||
| - | | Endometrial cancer | 674 | 29 | 13 | 21 | | ||
| - | | Ovarian cancer | 98 | 9 | 8 | 4 | | ||
| - | | Vagina and vulva cancer | 11 | 2 | 0 | 0 | | ||
| - | | Lung cancer | 70 | 26 | 13 | 13 | | ||
| - | | Cancer of the head/neck (excl. eye and salivary glands | 93 | 5 | 7 | 6 | | ||
| - | | Eye cancer | 11 | 2 | 0 | 3 | | ||
| - | | Salivary gland cancer | 24 | 0 | 0 | 1 | | ||
| - | | Central nervous system cancer | 75 | 9 | 7 | 18 | | ||
| - | | Prostate cancer | 320 | 79 | 57 | 100 | | ||
| - | | Penile cancer | 5 | 0 | 0 | 2 | | ||
| - | | Testicular cancer | 206 | 10 | 9 | 5 | | ||
| - | | Urinary tract and bladder cancer | 118 | 20 | 18 | 15 | | ||
| - | | Bowel cancer | 384 | 56 | 45 | 67 | | ||
| - | | Esophageal cancer | 20 | 6 | 11 | 8 | | ||
| - | | Stomach cancer | 15 | 3 | 1 | 3 | | ||
| - | | Pancreatic cancer | 10 | 6 | 7 | 2 | | ||
| - | | Gallbladder cancer | 2 | 1 | 2 | 1 | | ||
| - | | Liver cancer | 9 | 1 | 0 | 0 | | ||
| - | | Thyroid cancer | 108 | 6 | 7 | 6 | | ||
| - | | Bone and soft tissue cancer | 90 | 8 | 7 | 14 | | ||
| - | | Kidney cancer | 89 | 14 | 12 | 17 | | ||
| - | | Plasma cancer | 19 | 9 | 3 | 6 | | ||
| - | | Leukemia | 94 | 35 | 4 | 12 | | ||
| - | | Lymph node cancer | 225 | 28 | 14 | 15 | | ||
| - | | Cancer, but location unknown | 92 | 18 | 8 | 3 | | ||
| - | | Pre-stage cancer | 314 | 48 | 28 | 7 | | ||
| - | | Certainly no cancer (only baseline) | 145526 | - | - | - | | ||
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| - | ====Smoking amongst participant with cancer at baseline==== | ||
| - | Below is a table that shows how many participants that have cancer and smoke currently or have smoked in the past month. | ||
| - | |||
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| - | |** Smoking frequency amongst cancer patients**|**Participants with cancer** | **Participants without cancer** | | ||
| - | | **Smokers** | 1155 (16,9%) | 30046 (21,6%) | | ||
| - | | **Non-smokers** | 5690 (83,1%) | 109325 (78.4%) | | ||
| - | | **Total** | 6845 (100%) | 139371 (100%) | | ||
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