cancer
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cancer [2020/09/11 16:54] trynke [Table] |
cancer [2025/02/05 14:49] (current) |
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| [[start|Lifelines]] participants were asked the following questions about their experiences with cancer ([[sections|section]]: [[Diseases & symptoms]]).\\ | [[start|Lifelines]] participants were asked the following questions about their experiences with cancer ([[sections|section]]: [[Diseases & symptoms]]).\\ | ||
| - | Note that self-reported data on cancer (free text) is not freely available due to the risk of identifying participants. The answers are coded, and the codes will become available soon.\\ | + | Note that it is possible to link Lifelines data to PALGA and IKNL cancer registries.\\ |
| - | Also note that it is possible to link Lifelines data to PALGA and IKNL cancer registries.\\ | + | |
| Some statistics on the self-reported prevalence and incidence of cancer in the Lifelines [[cohort]] can be found [[cancer statistics|here]]. | Some statistics on the self-reported prevalence and incidence of cancer in the Lifelines [[cohort]] can be found [[cancer statistics|here]]. | ||
| - | | **Questions English** | **Questions Dutch** | **Code** | **Variable** | **Assessment** | **Age** | | + | | **Questions English** | **Questions Dutch** | **Code** | **Variable** | **Assessment** | **Age** | |
| - | | Do you have cancer or have you had cancer? | Hebt u kanker of hebt u kanker gehad? | cancer_lifetime_adu_q_1 | HEALTH16A | [[1A Questionnaire 1|1A]] [[NEXT]] | 18+ | | + | | Do you have cancer or have you had cancer? | Hebt u kanker of hebt u kanker gehad? | cancer_lifetime_adu_q_1 | HEALTH16A | [[1A Questionnaire 1|1A]] [[NEXT]] | 18+ | |
| - | | What type of cancer? | Wat voor kanker? | cancer_type_adu_q_1 | HEALTH16B | [[1A Questionnaire 1|1A]] [[NEXT]] | 18+ | | + | | What type of cancer? | Wat voor kanker? | cancer_type_adu_q_1 | HEALTH16B | [[1A Questionnaire 1|1A]] [[NEXT]] | 18+ | |
| - | | How old were you when you got cancer? | Hoe oud was u toen u voor het eerst kanker kreeg? | cancer_startage_adu_q_1 | HEALTH16C | [[1A Questionnaire 1|1A]] | 18+ | | + | | How old were you when you got cancer? | Hoe oud was u toen u voor het eerst kanker kreeg? | cancer_startage_adu_q_1 | HEALTH16C | [[1A Questionnaire 1|1A]] | 18+ | |
| - | | Were you cured from cancer? | Bent u genezen verklaard?/ Hebt u kanker of hebt u kanker gehad? | cancer_cured_adu_q_1 | HEALTH16D | [[1A Questionnaire 1|1A]] | 18+ | | + | | Were you cured from cancer? / Do you have cancer or have you had cancer? | Bent u genezen verklaard?/ Hebt u kanker of hebt u kanker gehad? | cancer_cured_adu_q_1 | HEALTH16D | [[1A Questionnaire 1|1A]] [[proxy]] | 18+ | |
| - | | Did the health problems listed below start since the last time you filled in the LifeLines questionnaire? | Hebt u onderstaande gezondheidsproblemen gekregens sinds de vorige keer dat u een lifelines vragenlijst invulde? | | | | | | + | | Cancer / Have you (had) one of the following chronic conditions? | Kanker / Hebt u één van de volgende chronische aandoeningen (gehad)? | cancer_presence_adu_q_2 | HEALTH16A[P] | [[Proxy]] | 18+ | |
| - | | Cancer | Kanker | cancer_followup_adu_q_1 | HEALTH100C | [[1B]] [[1C]] [[2A Questionnaire 1|2A]] | 18+ | | + | | Cancer since year: / Have you (had) one of the following chronic conditions? | Kanker sinds jaar: / Hebt u één van de volgende chronische aandoeningen (gehad)? | cancer_presence_adu_q_2_a | HEALTH_16YR | [[Proxy]] | 18+ | |
| - | | Cancer type: | Soort kanker: | cancertype_followup_adu_q_1 | HEALTH100C1 | [[1B]] [[1C]] | 18+ | | + | | Type of cancer: / Have you (had) one of the following chronic conditions? | Vorm van kanker: / Hebt u één van de volgende chronische aandoeningen (gehad)? | cancer_type_adu_q_2 | HEALTH16B[P] | [[Proxy]] | 18+ | |
| - | | Colon cancer | Darmkanker | coloncancer_followup_adu_q_1 | HEALTH100C2 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Did the health problems listed below start since the last time you filled in the LifeLines questionnaire? | Hebt u onderstaande gezondheidsproblemen gekregen sinds de vorige keer dat u een lifelines vragenlijst invulde? | | | | | |
| - | | Lung cancer | Longkanker | lungcancer_followup_adu_q_1 | HEALTH100C3 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Cancer | Kanker | cancer_followup_adu_q_1 | HEALTH100C | [[1B]] [[1C]] [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Skin cancer | Huidkanker | skincancer_followup_adu_q_1 | HEALTH100C4 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Cancer type: | Soort kanker: | cancertype_followup_adu_q_1 | HEALTH100C1 | [[1B]] [[1C]] | 18+ | |
| - | | Brain tumour | Hersentumor | braintumour_followup_adu_q_1 | HEALTH100C5 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Colon cancer | Darmkanker | coloncancer_followup_adu_q_1 | HEALTH100C2 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Bone cancer | Botkanker | bonecancer_followup_adu_q_1 | HEALTH100C6 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Lung cancer | Longkanker | lungcancer_followup_adu_q_1 | HEALTH100C3 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Breast cancer | Borstkanker | breastcancer_followup_adu_q_1 | HEALTH100C7 | [[1C]] [[2A Questionnaire 1|2A]] | 18+ | | + | | Skin cancer | Huidkanker | skincancer_followup_adu_q_1 | HEALTH100C4 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Prostate cancer | Prostaatkanker | prostatecancer_followup_adu_q_1 | HEALTH100C8 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Brain tumour | Hersentumor | braintumour_followup_adu_q_1 | HEALTH100C5 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Other type of cancer: | Andere vorm van kanker nl: | othercancer_followup_adu_q_1 | HEALTH100C9 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Bone cancer | Botkanker | bonecancer_followup_adu_q_1 | HEALTH100C6 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| + | | Breast cancer | Borstkanker | breastcancer_followup_adu_q_1 | HEALTH100C7 | [[1C]] [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | | ||
| + | | Prostate cancer | Prostaatkanker | prostatecancer_followup_adu_q_1 | HEALTH100C8 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | | ||
| + | | Other type of cancer: | Andere vorm van kanker nl: | othercancer_followup_adu_q_1 | HEALTH100C9 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] | 18+ | | ||
| + | | Have you ever received a diagnosis of skin cancer? | Hebt u ooit de diagnose huidkanker gekregen? | skincancer_diagnosis_adu_q_1 | DERM005 | [[3A Questionnaire 1|3A]] | 18+ | | ||
| + | | Do you know which type of skin cancer you had? | Weet u welk type huidkanker u hebt gehad? / Hebt u ooit de diagnose huidkanker gekregen? | skincancer_type_adu_q_1 | DERM005A | [[3A Questionnaire 1|3A]] | 18+ | | ||
| + | | Have you participated in the population screening for cervical cancer (smear test)? | Hebt u deelgenomen aan het bevolkingsonderzoek baarmoederhalskanker (uitstrijkje)? | screentest_cervicalcancer_adu_q_1 | PREV14 | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | What was the result of your last screentest for cervical cancer? | Wat was het resultaat van uw laatste bevolkingsonderzoek naar baarmoederhalskanker? | screentest_cervicalcancer_adu_q_1_a | PREV14A | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | Have you participated in the population screening for breast cancer? | Hebt u deelgenomen aan het bevolkingsonderzoek borstkanker? | screentest_breastcancer_adu_q_1 | PREV15 | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | What was the result of your last screentest for breast cancer? | Wat was het resultaat van het onderzoek naar borstkanker? | screentest_breastcancer_adu_q_1_a | PREV15A | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | Have you participated in the population screening for colon cancer? | Hebt u deelgenomen aan het bevolkingsonderzoek darmkanker? | screentest_coloncancer_adu_q_1 | PREV16 | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | What was the result of your last screentest for colon cancer? | Wat was het resultaat van het onderzoek naar darmkanker? | screentest_coloncancer_adu_q_1_a | PREV16A | [[3A Questionnaire 3|3A]] | 18+ | | ||
| - | A large subcohort of adult female participants answered more detailed questions on this topic in the context of an [[additional assessments|additional questionnaire]] on women's reproductive health ([[ROAQ]]).\\ | ||
| - | | **Questions English** | **Questions Dutch** | **Variable** | **Assessment** | **Age** | | ||
| - | | | Kanker/ Is er ooit één van de volgende aandoeningen bij u vastgesteld of hebt u onderstaande klachten? | HEALTHA10 | [[ROAQ]] | 18+ | | ||
| - | | | Op welke leeftijd of in welk jaar werd kanker bij u vastgesteld of de klachten ten gevolge van deze ziekte? | HEALTHA10_1/A/B | [[ROAQ]] | 18+ | | ||
| - | | | Welke behandelingen hebt u gekregen om de kanker te bestrijden? | | | | | ||
| - | | | Chemotherapie | HEALTHA10CH | [[ROAQ]] | 18+ | | ||
| - | | | Operatie | HEALTHA10OP | [[ROAQ]] | 18+ | | ||
| - | | | Bestraling | HEALTHA10ST | [[ROAQ]] | 18+ | | ||
| - | | | Geen van bovenstaande | HEALTHA10GB | [[ROAQ]] | 18+ | | ||
cancer.1599836073.txt.gz · Last modified: 2025/02/05 14:49 (external edit)
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