| Both sides previous revisionPrevious revisionNext revision | Previous revision |
| cancer_types [2025/12/04 14:12] – [Table] simone | cancer_types [2025/12/04 15:37] (current) – [Cancer types] simone |
|---|
| ======= Cancer types ======= | ======= Cancer types ======= |
| | At [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], and [[3a_questionnaire_1|3A]] type of cancer (tumor) was reported by participants in an open text field. From 2A onwards a limited number of cancer types (i.e., colon cancer, lung cancer, skin cancer, brain tumor, bone cancer, breast cancer, and prostate cancer) are also directly assessed via yes/no questions. At [[3b|3B]] only these direct cancer type questions are used, there is no open text field. Researchers from the University Medical Center Groningen coded these [[cancer|self-reported cancer variables]] into 35 cancer type categories. The secondary cancer type variables will be added to the [[https://data-catalogue.lifelines.nl/|Lifelines catalogue]] very soon. |
| \\ | \\ |
| At [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], and [[3a_questionnaire_1|3A]] type of cancer (tumor) was reported by participants in an open text field. From 2A onwards a limited number of cancer types (i.e., colon cancer, lung cancer, skin cancer, brain tumor, bone cancer, breast cancer, and prostate cancer) are also directly assessed via yes/no questions. At [[3b|3B]] only these direct cancer type questions are used, there is no open text field. Researchers from the University Medical Center Groningen coded these [[cancer|self-reported cancer variables]] into [[cancer_types|35 cancer type categories]]. The secondary cancer type variables can be requested in the [[https://data-catalogue.lifelines.nl/|Lifelines catalogue]]. | |
| \\ | \\ |
| | When the secondary cancer variables have been used in your research, you will have to include a reference to the validation paper. |
| \\ | \\ |
| | * [[https://doi.org/10.1016/j.clnu.2020.06.016|Cortés-Ibáñez, F.O., et al. The validity of self-reported cancer in a population-based cohort compared to that in formally registered sources. Cancer Epidemiology (2022): 1022-1068.]] |
| ===== Data processing ===== | ===== Data processing ===== |
| Tumors were coded using the directly assessed cancer variables or terms mentioned in the open text field and categorized according to type, location, and stage. If participants mentioned a term related to metastasis in the open text field an additional cancer metastasis variable was coded as 1. | Tumors were coded using the directly assessed cancer variables or terms mentioned in the open text field and categorized according to type, location, and stage. If participants mentioned a term related to metastasis in the open text field an additional cancer metastasis variable was coded as 1. For 1A the coding of all open text fields was checked by an MD/PhD student of the Oncology Epidemiology department. When in doubt a pathologist was asked to make a final decision. If the student or pathologist did not agree with the coding of an open text field, the text field was manually recoded based on their input. From 1B onwards the algorithm and manual correction have been applied by the Lifelines data management team. Only the open text fields that were also recoded at 1A have manually been corrected. Additionally, open text fields that were not coded by the algorithm have manually been coded. |
| |
| | **Value** | **Label English** | **Description** | | | **Value** | **Label English** | **Description** | |
| | 34 | lymphoma | contains the participants that mentioned a term related to lymph node cancer | | | 34 | lymphoma | contains the participants that mentioned a term related to lymph node cancer | |
| | 35 | other blood cancer | contains the participants that mentioned a term related to blood cancer that did not fit any of the other categories | | | 35 | other blood cancer | contains the participants that mentioned a term related to blood cancer that did not fit any of the other categories | |
| |
| |
| For 1A the coding of all open text fields was checked by an MD/PhD student of the Oncology Epidemiology department. When in doubt a pathologist was asked to make a final decision. If the student or pathologist did not agree with the coding of an open text field, the text field was manually recoded based on their input. From 1B onwards the algorithm and manual correction have been applied by the Lifelines data management team. Only the open text fields that were also recoded at 1A have manually been corrected. Additionally, open text fields that were not coded by the algorithm have manually been coded. | |
| \\ | |
| \\ | |
| ===== Validation ===== | ===== Validation ===== |
| The data processing described above was validated by Cortés-Ibáñez //et al. 2022// on the 1A data. | The data processing described above was validated by Cortés-Ibáñez //et al. 2022// on the 1A data. |
| \\ | \\ |
| \\ | \\ |
| ===== Reference ===== | |
| When the secondary cancer variables have been used in you research, you will have to include a reference to the validation paper. | |
| \\ | |
| * [[https://doi.org/10.1016/j.clnu.2020.06.016|Cortés-Ibáñez, F.O., et al. The validity of self-reported cancer in a population-based cohort compared to that in formally registered sources. Cancer Epidemiology (2022): 1022-1068.]] | |
| \\ | |
| ===== Variables ===== | ===== Variables ===== |
| | **Label English** | **Label Dutch** | **Code** | **Variable** | **Assessment** | **Age** | | | **Label English** | **Label Dutch** | **Code** | **Variable** | **Assessment** | **Age** | |
| | participant reported having or having had this first type of cancer | deelnemer zegt dit eerste type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_01 | cancerlifetime1 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported having or having had this first type of cancer | deelnemer zegt dit eerste type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_01 | cancerlifetime1 | [[1a_questionnaire_1|1A]] | 18+ | |
| | participant reported having or having had this second type of cancer | deelnemer zegt dit tweede type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_02 | cancerlifetime2 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported having or having had this second type of cancer | deelnemer zegt dit tweede type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_02 | cancerlifetime2 | [[1a_questionnaire_1|1A]] | 18+ | |
| | participant reported having or having had this third type of cancer | deelnemer zegt dit derde type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_03 | cancerlifetime3 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported having or having had this third type of cancer | deelnemer zegt dit derde type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_03 | cancerlifetime3 | [[1a_questionnaire_1|1A]] | 18+ | |
| | participant reported having or having had this fourth type of cancer | deelnemer zegt dit vierde type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_04 | cancerlifetime4 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported having or having had this fourth type of cancer | deelnemer zegt dit vierde type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_04 | cancerlifetime4 | [[1a_questionnaire_1|1A]] | 18+ | |
| | participant reported having or having had this fifth type of cancer | deelnemer zegt dit vijfde type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_05 | cancerlifetime5 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported having or having had this fifth type of cancer | deelnemer zegt dit vijfde type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_05 | cancerlifetime5 | [[1a_questionnaire_1|1A]] | 18+ | |
| | participant reported having or having had this sixth type of cancer | deelnemer zegt dit zesde type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_06 | cancerlifetime5 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported having or having had this sixth type of cancer | deelnemer zegt dit zesde type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_06 | cancerlifetime6 | [[1a_questionnaire_1|1A]] | 18+ | |
| | participant reported having or having had this seventh type of cancer | deelnemer zegt dit zevende type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_07 | cancerlifetime6 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported having or having had this seventh type of cancer | deelnemer zegt dit zevende type kanker te hebben of te hebben gehad | cancertype_lifetime_adu_c_07 | cancerlifetime7 | [[1a_questionnaire_1|1A]] | 18+ | |
| | participant reported getting this first type of cancer since filling in the previous questionnaire | deelnemer zegt dit eerste type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_01 | cancerfollowup1 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported getting this first type of cancer since filling in the previous questionnaire | deelnemer zegt dit eerste type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_01 | cancerfollowup1 | [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | |
| | participant reported getting this second type of cancer since filling in the previous questionnaire | deelnemer zegt dit tweede type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_02 | cancerfollowup2 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported getting this second type of cancer since filling in the previous questionnaire | deelnemer zegt dit tweede type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_02 | cancerfollowup2 | [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | |
| | participant reported getting this third type of cancer since filling in the previous questionnaire | deelnemer zegt dit derde type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_03 | cancerfollowup3 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported getting this third type of cancer since filling in the previous questionnaire | deelnemer zegt dit derde type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_03 | cancerfollowup3 | [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | |
| | participant reported getting this fourth type of cancer since filling in the previous questionnaire | deelnemer zegt dit vierde type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_04 | cancerfollowup4 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported getting this fourth type of cancer since filling in the previous questionnaire | deelnemer zegt dit vierde type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_04 | cancerfollowup4 | [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | |
| | participant reported getting this fifth type of cancer since filling in the previous questionnaire | deelnemer zegt dit vijfde type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_05 | cancerfollowup5 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported getting this fifth type of cancer since filling in the previous questionnaire | deelnemer zegt dit vijfde type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_05 | cancerfollowup5 | [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | |
| | participant reported getting this sixth type of cancer since filling in the previous questionnaire | deelnemer zegt dit zesde type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_06 | cancerfollowup6 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported getting this sixth type of cancer since filling in the previous questionnaire | deelnemer zegt dit zesde type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_06 | cancerfollowup6 | [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | |
| | participant reported getting this seventh type of cancer since filling in the previous questionnaire | deelnemer zegt dit zevende type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_07 | cancerfollowup7 | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | participant reported getting this seventh type of cancer since filling in the previous questionnaire | deelnemer zegt dit zevende type kanker te hebben gekregen sinds het invullen van de vorige vragenlijst | cancertype_followup_adu_c_07 | cancerfollowup7 | [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | |
| | terms mentioning metastasis identified in the open text field | term die verwijst naar uitzaaingen geïdentificeerd in het open tekstveld | cancer_metastasis_adu_c_1 | cancermetastasis | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]], [[3b|3B]] | 18+ | | | terms mentioning metastasis identified in the open text field | term die verwijst naar uitzaaingen geïdentificeerd in het open tekstveld | cancer_metastasis_adu_c_1 | cancermetastasis | [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], [[3a_questionnaire_1|3A]] | 18+ | |
