Differences

This shows you the differences between two versions of the page.

--- cancer_types [2025/12/04 15:31] – [Data processing] simone
+++ cancer_types [2025/12/04 15:37] (current) – [Cancer types] simone
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 ======= Cancer types =======
+At [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], and [[3a_questionnaire_1|3A]] type of cancer (tumor) was reported by participants in an open text field. From 2A onwards a limited number of cancer types (i.e., colon cancer, lung cancer, skin cancer, brain tumor, bone cancer, breast cancer, and prostate cancer) are also directly assessed via yes/no questions. At [[3b|3B]] only these direct cancer type questions are used, there is no open text field. Researchers from the University Medical Center Groningen coded these [[cancer|self-reported cancer variables]] into 35 cancer type categories. The secondary cancer type variables will be added to the [[https://data-catalogue.lifelines.nl/|Lifelines catalogue]] very soon.
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-At [[1a_questionnaire_1|1A]], [[1b|1B]], [[1c|1C]], [[2a_questionnaire_1|2A]], and [[3a_questionnaire_1|3A]] type of cancer (tumor) was reported by participants in an open text field. From 2A onwards a limited number of cancer types (i.e., colon cancer, lung cancer, skin cancer, brain tumor, bone cancer, breast cancer, and prostate cancer) are also directly assessed via yes/no questions. At [[3b|3B]] only these direct cancer type questions are used, there is no open text field. Researchers from the University Medical Center Groningen coded these [[cancer|self-reported cancer variables]] into [[cancer_types|35 cancer type categories]]. The secondary cancer type variables will be added to the [[https://data-catalogue.lifelines.nl/|Lifelines catalogue]] very soon.
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+When the secondary cancer variables have been used in your research, you will have to include a reference to the validation paper.
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+  * [[https://doi.org/10.1016/j.clnu.2020.06.016|Cortés-Ibáñez, F.O., et al. The validity of self-reported cancer in a population-based cohort compared to that in formally registered sources. Cancer Epidemiology (2022): 1022-1068.]]
 ===== Data processing =====
 Tumors were coded using the directly assessed cancer variables or terms mentioned in the open text field and categorized according to type, location, and stage. If participants mentioned a term related to metastasis in the open text field an additional cancer metastasis variable was coded as 1. For 1A the coding of all open text fields was checked by an MD/PhD student of the Oncology Epidemiology department. When in doubt a pathologist was asked to make a final decision. If the student or pathologist did not agree with the coding of an open text field, the text field was manually recoded based on their input. From 1B onwards the algorithm and manual correction have been applied by the Lifelines data management team. Only the open text fields that were also recoded at 1A have manually been corrected. Additionally, open text fields that were not coded by the algorithm have manually been coded.
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 | 34         | lymphoma                                                                     | contains the participants that mentioned a term related to lymph node cancer                                                                                                                                  |
 | 35         | other blood cancer                                                           | contains the participants that mentioned a term related to blood cancer that did not fit any of the other categories                                                                                          |
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 ===== Validation =====
 The data processing described above was validated by Cortés-Ibáñez //et al. 2022// on the 1A data.
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-===== Reference =====
-When the secondary cancer variables have been used in your research, you will have to include a reference to the validation paper.
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-  * [[https://doi.org/10.1016/j.clnu.2020.06.016|Cortés-Ibáñez, F.O., et al. The validity of self-reported cancer in a population-based cohort compared to that in formally registered sources. Cancer Epidemiology (2022): 1022-1068.]]
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 ===== Variables =====
 | **Label English**                                                                                     | **Label Dutch**                                                                                         | **Code**                      | **Variable**      | **Assessment**                                                                                         | **Age**  |