connective_tissue_disease_csq
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connective_tissue_disease_csq [2019/10/14 11:44] – trynke | connective_tissue_disease_csq [2025/02/05 13:49] (current) – external edit 127.0.0.1 | ||
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- | ====== Connective Tissue Disease (CTQ) ====== | + | ====== Connective Tissue Disease (CSQ) ====== |
- | The Connective Tissue Disease Screening Questionnaire (CSQ) is a highly reproducible, | + | The Connective Tissue Disease Screening Questionnaire (CSQ) is a highly reproducible, |
+ | Note that musculoskeletal [[musculoskeletal symptoms|symptoms]] and [[musculoskeletal conditions|diseases]] were also assessed in general within [[start|Lifelines]] ([[sections|section]]: | ||
===== Background ===== | ===== Background ===== | ||
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**Reliability**\\ | **Reliability**\\ | ||
The K statistic calculated to evaluate test-retest reliability for detection of any potential CTD was 0.82, a rate indicating “excellent” reproducibility. Test-retest reliability values for specific CTDs were 0.50 for SLE, 0.80 for RA, 0.68 for scleroderma, | The K statistic calculated to evaluate test-retest reliability for detection of any potential CTD was 0.82, a rate indicating “excellent” reproducibility. Test-retest reliability values for specific CTDs were 0.50 for SLE, 0.80 for RA, 0.68 for scleroderma, | ||
+ | |||
+ | ===== Variables ===== | ||
+ | | **Questions in English** | ||
+ | | do you have joint pain? | hebt u pijn in uw gewrichten? | ||
+ | | do you have wrist or hand pain? | hebt u pijn in uw polsen of handen? | ||
+ | | are your wrists or hands swollen? | ||
+ | | is it difficult for you to make a fist? | kost het u moeite om een vuist te maken? | ||
+ | | do you have joint stiffness in the morning? | ||
+ | | if yes, how long does the stiffness last? / do you have joint stiffness in the morning? | ||
+ | | do you have complaints in the same joints on both sides of your body? | hebt u aan beide kanten van uw lichaam klachten in dezelfde gewrichten ? | csq_jointpain_adu_q_06 | ||
+ | | do joint complaints limit you in your daily activities (work, leisure, personal care)? | ||
+ | | do you have easily bleeding gums, spontaneously or after dental care? | hebt u last van snel bloedend tandvlees spontaan of na tandverzorging? | ||
+ | | do you have any loose teeth? | ||
+ | | can you see the roots of your teeth (necks of the teeth)? | ||
+ | | have you had lower back pain for longer than 3 months now? | hebt u al langer dan drie maanden last van uw onderrug? | ||
+ | | did your back complaints begin before age 45? | zijn uw rugklachten begonnen voor uw 45e levensjaar? | ||
+ | | do you wake up at dawn because of pain in your lower back? | wordt u tegen de ochtend wakker van pijn in uw onderrug? | ||
+ | | do you have morning stiffness in the back that lasts more than 30 minutes? | ||
+ | | does exercising reduce the back complaints? | ||
+ | | how did your back pain begin, suddenly or gradually? | ||
+ | | have you had joint complaints for more than 3 months now? | hebt u al langer dan 3 maanden gewrichtsklachten? | ||
+ | | have you ever had joint stiffness in the morning lasting at least 1 hour for more than 6 weeks? | ||
+ | | have you ever had nodules or bumps under the skin around your elbows or ankles? | ||
+ | | left wrist / have you ever had swelling in any of the following joints, lasting more than 6 weeks? | ||
+ | | right wrist / have you ever had swelling in any of the following joints, lasting more than 6 weeks? | ||
+ | | left finger joints (but not the joints nearest the fingernails) / have you ever had swelling in any of the following joints, lasting more than 6 weeks? | ||
+ | | right finger joints (but not the joints nearest the fingernails) / have you ever had swelling in any of the following joints, lasting more than 6 weeks? | ||
+ | | left elbow / have you ever had swelling in any of the following joints, lasting more than 6 weeks? | ||
+ | | right elbow / have you ever had swelling in any of the following joints, lasting more than 6 weeks? | ||
+ | | left knee / have you ever had swelling in any of the following joints, lasting more than 6 weeks? | ||
+ | | right knee / have you ever had swelling in any of the following joints, lasting more than 6 weeks? | ||
+ | | have you ever had a blood test for rheumatoid arthritis? | ||
+ | | if so, was the result: / have you ever had a blood test for rheumatoid arthritis? | ||
+ | | have you ever had a blood test for lupus/sle? (e.g. ana or ena) | is uw bloed ooit getest op lupus/ sle ? (bijvoorbeeld ana of ena) | csq_lupus_adu_q_21 | ||
+ | | if you have ever had a blood test for lupus/sle, was the result: | ||
+ | | are your fingers unusually sensitive to the cold? | zijn uw vingers overmatig gevoelig voor kou? | csq_fingers_adu_q_22 | ||
+ | | have your fingers ever shown any unusual color changes in the cold? | zijn uw vingers ooit abnormaal verkleurd geweest in de kou? | csq_fingers_adu_q_23 | ||
+ | | if yes, was the color white? / have your fingers ever shown any unusual color changes in the cold? | zo ja, was de kleur wit? / zijn uw vingers ooit abnormaal verkleurd geweest in de kou? | csq_fingers_adu_q_23_a | ||
+ | | if yes, was the color blue? / have your fingers ever shown any unusual color changes in the cold? | zo ja, was de kleur blauw? / zijn uw vingers ooit abnormaal verkleurd geweest in de kou? | csq_fingers_adu_q_23_b | ||
+ | | if yes, was the color purple? / have your fingers ever shown any unusual color changes in the cold? | zo ja, was de kleur paars? / zijn uw vingers ooit abnormaal verkleurd geweest in de kou? | csq_fingers_adu_q_23_c | ||
+ | | if yes, was the color red? / have your fingers ever shown any unusual color changes in the cold? | zo ja, was de kleur rood? / zijn uw vingers ooit abnormaal verkleurd geweest in de kou? | csq_fingers_adu_q_23_d | ||
+ | | have you ever had sores in your mouth or nose for more than 2 weeks at a time? | hebt u ooit langer dan 2 weken zweertjes in uw mond of neus gehad? | ||
+ | | have you ever had a red rash on your cheeks for more than a month? | ||
+ | | have you ever had skin break out (rash) after being in the sun (not sunburn)? | ||
+ | | have you ever had pleurisy or chest pain made worse with deep breaths for more than a few days (not caused by a bruised rib or a cold)? | ||
+ | | have you ever had rapid loss of lots of hair? | hebt u ooit veel haar verloren in korte tijd? | csq_hairloss_adu_q_28 | ||
+ | | have you ever had an epileptic seizure? | ||
+ | | have you ever had puffy, swollen fingers for more than a month? | ||
+ | | have you ever had skin thickening or tightening of face, neck, trunk, arms or legs ? (not caused by fluid retention) | ||
+ | | have you ever had skin thickening or tightening of the fingers or toes? | is de huid van uw vingers of tenen ooit dikker of strakker dan normaal geweest ? | csq_skinthickening_adu_q_32 | ||
+ | | have you ever had sores leaving scars in the finger tips? | hebt u ooit zweertjes op uw vingertoppen gehad die littekens achterlieten? | ||
+ | | have you ever had muscle weakness (less muscle strength than usual) for more than 3 months? | ||
+ | | have you ever had difficulty rising from a chair for more than 3 months? | ||
+ | | have you ever had difficulty combing your hair for more than 3 months? | ||
+ | | have you ever had a gritty or sandy sensation in your eyes? | hebt u ooit een korrelig of zanderig gevoel in uw ogen gehad? | ||
+ | | do you regularly wake up with a dry mouth, requiring you to drink water? | ||
+ | | anemia? / have you ever been told by a doctor that you had | bloedarmoede? | ||
+ | | low white cell count? / have you ever been told by a doctor that you had | laag aantal witte bloedcellen? | ||
+ | | low platelet count? / have you ever been told by a doctor that you had | laag aantal bloedplaatjes? | ||
+ | | protein in your urine? / have you ever been told by a doctor that you had | eiwit in uw urine? / heeft een dokter u ooit verteld dat u het volgende had: | csq_proteinurine_adu_q_39_d | ||
+ | | lupus/sle of the skin? have you ever been told by a doctor that you had | lupus/sle van de huid? / heeft een dokter u ooit verteld dat u het volgende had: | csq_lupus_adu_q_39_e | ||
+ | | scarring of the lungs (pulmonary fibrosis)? / have you ever been told by a doctor that you had | littekenweefsel in uw longen (longfibrose)? | ||
+ | | high cpk (muscle enzyme) in your blood? / have you ever been told by a doctor that you had | hoog cpk (spier-eiwit) in uw bloed? / heeft een dokter u ooit verteld dat u het volgende had: | csq_cpk_adu_q_39_g |
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