quality_of_life_rand
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| ====== Quality of Life (RAND-36) ====== | ====== Quality of Life (RAND-36) ====== | ||
| - | The RAND-36 measures ‘Health Related Quality of Life’, i.e. how health impacts an individual’s ability to function and his or her perceived well-being in physical, mental and social domains of life ((Hays RD, Morales LS. The RAND-36 measure of health-related quality of life. Ann Med 2001; 33:350-357)). [[sections|Section]]: [[Wellbeing & subjective health]].\\ | + | The RAND-36 measures ‘Health Related Quality of Life’, i.e. how health impacts an individual’s ability to function and his or her perceived well-being in physical, mental and social domains of life((Hays RD, Morales LS. The RAND-36 measure of health-related quality of life. Ann Med 2001; 33:350-357)). [[sections|Section]]: [[Wellbeing & subjective health]].\\ |
| The RAND-36 is highly similar to the [[https://en.wikipedia.org/wiki/SF-36|Short Form (36) Health Survey]].\\ | The RAND-36 is highly similar to the [[https://en.wikipedia.org/wiki/SF-36|Short Form (36) Health Survey]].\\ | ||
| - | The full RAND-36 was performed at [[1A|baseline]] and in the additional questionnaire [[QEAR]]. At several other assessments, only the first two items were assessed.\\ | + | The full RAND-36 was performed at [[1A|baseline]] and in the additional questionnaire [[EARQ]]. At several other assessments, only the first two items were assessed.\\ |
| - | Note that [[https://en.wikipedia.org/wiki/Quality_of_life|quality of life]] is also assessed in Lifelines using the [[Quality of Life (HHIA|HHIA]] and [[Life satisfaction (SWLS)|SWLS]] questionnaires. | + | Note that [[https://en.wikipedia.org/wiki/Quality_of_life|quality of life]] is also assessed in Lifelines using the [[Life satisfaction (SWLS)|SWLS]] and [[Quality of Life (EQ5D)|EQ5D]] instruments. |
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| The RAND-36 is comprised of 36 items selected from a larger pool of items used in the RAND Medical Outcomes Study (MOS).\\ | The RAND-36 is comprised of 36 items selected from a larger pool of items used in the RAND Medical Outcomes Study (MOS).\\ | ||
| Twenty of the items are administered using a past 4 weeks reporting interval. RAND-36 assesses eight health concepts with multi item scales (35 items): | Twenty of the items are administered using a past 4 weeks reporting interval. RAND-36 assesses eight health concepts with multi item scales (35 items): | ||
| - | * physical functioning (10 items) | + | |
| - | * role limitations caused by physical health problems (4 items) | + | * 10x physical functioning (RAND 03A-J, very limited/little limited/not limited) |
| - | * role limitations caused by emotional problems (3 items) | + | * 4x role limitations caused by physical health problems (RAND4A-D, yes/no) |
| - | * social functioning (2 items) | + | * 3x role limitations caused by emotional problems (RAND5A-C, yes/no) |
| - | * emotional well-being (5 items) | + | * 2x social functioning (RAND6/10, 5-point Likert scale) |
| - | * energy/fatigue (4 items) | + | * 2x pain (RAND7/8, 5-point Likert scale) |
| - | * pain (2 items) | + | * 5x emotional well-being (RAND9B/C/D/F/H, 6-point Likert scale) |
| - | * general health perceptions (5 items). | + | * 4x energy/fatigue (RAND9A/E/G/I, 6-point Likert scale) |
| + | * 4x general health perceptions (RAND11A-D, 5-point Likert scale). | ||
| + | |||
| + | The additional items assess the general health perceived by participants (all on a 5-point Likert scale), either at the time of the questionnaire (RAND1), compared to a year ago (RAND2), or compared to the time of the previous questionnaire (RAND2A). | ||
| ===== Scoring ===== | ===== Scoring ===== | ||
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| ===== Variables ===== | ===== Variables ===== | ||
| - | | **Questions English** | **Questions Dutch** | **Variable** | **Assessment** | **Age** | | + | | **Label English** | **Label Dutch** | **Code** | **Variable** | **Assessment** | **Age** | |
| - | | How would you rate your health, generally speaking? | Wat vindt u, over het algemeen genomen, van uw gezondheid? | RAND1 | [[1A Questionnaire 1|1A]] [[1B]] [[1C]] [[2A Questionnaire 1|2A]] [[2B]] [[NEXT]] [[QEAR]] [[QACT]] | 18+ | | + | | How would you rate your health, generally speaking? | Wat vindt u, over het algemeen genomen, van uw gezondheid? | rand_generalhealth_adu_q_01 | RAND1 | [[1A Questionnaire 1|1A]] [[1B]] [[1C]] [[2A Questionnaire 1|2A]] [[2B]] [[3A Questionnaire 1|3A]] [[3B]] [[ACTQ]] [[COVQ]] [[EARQ]] [[MAWQ]] [[NEXT]] | 18+ | |
| - | | Compared to a year ago, how would you rate your health, generally speaking? | In vergelijking met een jaar geleden, hoe zou u nu uw gezondheid in het algemeen beoordelen? | RAND2 | [[1A Questionnaire 1|1A]] [[1B]] [[1C]] [[2A Questionnaire 1|2A]] [[2B]] [[NEXT]] [[QEAR]] [[QACT]] | 18+ | | + | | Compared to a year ago, how would you rate your health, generally speaking? | In vergelijking met een jaar geleden, hoe zou u nu uw gezondheid in het algemeen beoordelen? | rand_generalhealth_adu_q_02 | RAND2 | [[1A Questionnaire 1|1A]] [[1B]] [[1C]] [[2A Questionnaire 1|2A]] [[2B]] [[3A Questionnaire 1|3A]] [[3B]] [[EARQ]] [[NEXT]] | 18+ | |
| - | | | In vergelijking met de keer dat u Lifelines vragenlijst 4 invulde, hoe zou u nu uw gezondheid in het algemeen beoordelen? | RAND2A | [[QACT]] | 18+ | | + | | compared to the time you filled in [lifelines questionnaire 2a-1], how would you rate your health, generally speaking? | in vergelijking met de keer dat u [lifelines vragenlijst 2a-1] invulde, hoe zou u nu uw gezondheid in het algemeen beoordelen? | rand_generalhealth_adu_q_02_v2 | RAND2A | [[ACTQ]] | 18+ | |
| - | | Does your health now limit you in the following activities? | Wordt u door op dit moment beperkt bij deze bezigheden? Zo ja, in welke mate? | | | | | + | | Does your health now limit you in the following activities? | Wordt u door op dit moment beperkt bij deze bezigheden? Zo ja, in welke mate? | | | | | |
| - | | Vigorous activities, such as running, lifting heavy objects, participating in strenuous sports. | Forse inspanning zoals hardlopen, zware voorwerpen tillen, inspannend sporten/ | RAND3A | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Vigorous activities, such as running, lifting heavy objects, participating in strenuous sports. | Forse inspanning zoals hardlopen, zware voorwerpen tillen, inspannend sporten/ | rand_physical_adu_q_03_a | RAND3A | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Moderate activities, such as moving a table, pushing a vacuum cleaner, bicycling. | Matige inspanning zoals het verplaatsen van een tafel, stofzuigen, fietsen | RAND3B | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Moderate activities, such as moving a table, pushing a vacuum cleaner, bicycling. | Matige inspanning zoals het verplaatsen van een tafel, stofzuigen, fietsen | rand_physical_adu_q_03_b | RAND3B | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Lifting or carrying groceries. | Tillen of boodschappen dragen | RAND3C | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Lifting or carrying groceries. | Tillen of boodschappen dragen | rand_physical_adu_q_03_c | RAND3C | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Climbing several flights of stairs. | Een paar trappen oplopen | RAND3D | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Climbing several flights of stairs. | Een paar trappen oplopen | rand_physical_adu_q_03_d | RAND3D | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Climbing one flight of stairs. | Een trap oplopen | RAND3E | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Climbing one flight of stairs. | Een trap oplopen | rand_physical_adu_q_03_e | RAND3E | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Bending, kneeling or stooping. | buigen, knielen of bukken | RAND3F | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Bending, kneeling or stooping. | buigen, knielen of bukken | rand_physical_adu_q_03_f | RAND3F | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Walking more than a kilometer. | meer dan een kilometer lopen | RAND3G | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Walking more than a kilometer. | meer dan een kilometer lopen | rand_physical_adu_q_03_g | RAND3G | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Walking half a kilometer. | een halve kilometer lopen | RAND3H | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Walking half a kilometer. | een halve kilometer lopen | rand_physical_adu_q_03_h | RAND3H | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Walking one hundred meters. | honderd meter lopen | RAND3I | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Walking one hundred meters. | honderd meter lopen | rand_physical_adu_q_03_i | RAND3I | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Bathing or dressing yourself. | uzelf wassen of aankleden | RAND3J | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Bathing or dressing yourself. | uzelf wassen of aankleden | rand_physical_adu_q_03_j | RAND3J | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of your Physical state? | Had u, ten gevolge van uw lichamelijke gezondheid, de afgelopen 4 weken een van de volgende problemen bij uw werk of andere dagelijkse bezigheden? | | | | | + | | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of your Physical state? | Had u, ten gevolge van uw lichamelijke gezondheid, de afgelopen 4 weken een van de volgende problemen bij uw werk of andere dagelijkse bezigheden? | | | | | |
| - | | Cut down the amount of time you spent on work or other activities. | U hebt minder tijd kunnen besteden aan werk of andere bezigheden | RAND4A | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Cut down the amount of time you spent on work or other activities. | U hebt minder tijd kunnen besteden aan werk of andere bezigheden | rand_limitations_adu_q_04_a | RAND4A | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Accomplished less than you would like. | U hebt minder bereikt dan u zou willen | RAND4B | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Accomplished less than you would like. | U hebt minder bereikt dan u zou willen | rand_limitations_adu_q_04_b | RAND4B | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Were limited in the kind of work or other activities. | U was beperkt in het soort werk of het soort bezigheden | RAND4C | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Were limited in the kind of work or other activities. | U was beperkt in het soort werk of het soort bezigheden | rand_limitations_adu_q_04_c | RAND4C | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Had difficulty performing the work or other activities (for example, it took extra effort). | U had moeite met het werk of andere bezigheden (het kostte u bijvoorbeeld extra inspanning) | RAND4D | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Had difficulty performing the work or other activities (for example, it took extra effort). | U had moeite met het werk of andere bezigheden (het kostte u bijvoorbeeld extra inspanning) | rand_limitations_adu_q_04_d | RAND4D | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Cut down the amount of time you spent on work or other activities. | U hebt minder tijd kunnen besteden aan werk of andere bezigheden | RAND5A | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Cut down the amount of time you spent on work or other activities. | U hebt minder tijd kunnen besteden aan werk of andere bezigheden | rand_limitations_adu_q_05_a | RAND5A | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Accomplished less than you would like. | U hebt minder bereikt dan u zou willen | RAND5B | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Accomplished less than you would like. | U hebt minder bereikt dan u zou willen | rand_limitations_adu_q_05_b | RAND5B | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Didn't do work or other activities as carefully as usual. | U hebt het werk of andere bezigheden niet zo zorgvuldig gedaan als u gewend bent | RAND5C | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Didn't do work or other activities as carefully as usual. | U hebt het werk of andere bezigheden niet zo zorgvuldig gedaan als u gewend bent | rand_limitations_adu_q_05_c | RAND5C | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | During the past 4 weeks, to what extent has your Physical state or emotional problems interfered with your normal social activities with family, friends, neighbors, or groups? | In hoeverre heeft uw lichamelijke gezondheid of hebben uw emotionele problemen u de afgelopen 4 weken belemmerd in uw normale sociale bezigheden met gezin, vrienden, buren of anderen? | RAND6 | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | During the past 4 weeks, to what extent has your Physical state or emotional problems interfered with your normal social activities with family, friends, neighbors, or groups? | In hoeverre heeft uw lichamelijke gezondheid of hebben uw emotionele problemen u de afgelopen 4 weken belemmerd in uw normale sociale bezigheden met gezin, vrienden, buren of anderen? | rand_social_adu_q_06(_v2) | RAND6 | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | How much bodily pain have you had during the past 4 weeks? | Hoeveel pijn had u de afgelopen 4 weken? | RAND7 | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | How much bodily pain have you had during the past 4 weeks? | Hoeveel pijn had u de afgelopen 4 weken? | rand_pain_adu_q_07 | RAND7 | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | In welke mate heeft pijn u de afgelopen vier weken belemmerd bij uw normale werkzaamheden (zowel werk buitenshuis als huishoudelijk werk)? | RAND8 | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | In welke mate heeft pijn u de afgelopen vier weken belemmerd bij uw normale werkzaamheden (zowel werk buitenshuis als huishoudelijk werk)? | rand_pain_adu_q_08(_v2) | RAND8 | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | How much of the time during the past 4 weeks | Hoe heeft u zich de afgelopen 4 weken gevoeld? | | | | | + | | How much of the time during the past 4 weeks | Hoe heeft u zich de afgelopen 4 weken gevoeld? | | | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | | |
| - | | Did you feel full of pep? | Voelde u zich levenslustig? | RAND9A | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Did you feel full of pep? | Voelde u zich levenslustig? | rand_energy_adu_q_09_a | RAND9A | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Have you been a very nervous person? | Voelde u zich erg zenuwachtig? | RAND9B | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Have you been a very nervous person? | Voelde u zich erg zenuwachtig? | rand_emotional_adu_q_09_b | RAND9B | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Have you felt so down in the dumps that nothing could cheer you up? | Zat u zo erg in de put dat niets u kon opvrolijken? | RAND9C | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Have you felt so down in the dumps that nothing could cheer you up? | Zat u zo erg in de put dat niets u kon opvrolijken? | rand_emotional_adu_q_09_c | RAND9C | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Have you felt calm and peaceful? | Voelde u zich kalm en rustig? | RAND9D | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Have you felt calm and peaceful? | Voelde u zich kalm en rustig? | rand_emotional_adu_q_09_d | RAND9D | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Did you have a lot of energy? | voelde u zich erg energiek?/ Hoe heeft u zich de afgelopen 4 weken gevoeld? | RAND9E | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Did you have a lot of energy? | voelde u zich erg energiek?/ Hoe heeft u zich de afgelopen 4 weken gevoeld? | rand_energy_adu_q_09_e | RAND9E | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Have you felt downhearted and blue? | Voelde u zich neerslachtig en somber? | RAND9F | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Have you felt downhearted and blue? | Voelde u zich neerslachtig en somber? | rand_emotional_adu_q_09_f | RAND9F | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Did you feel worn out? | Voelde u zich uitgeblust? | RAND9G | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Did you feel worn out? | Voelde u zich uitgeblust? | rand_energy_adu_q_09_g | RAND9G | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Have you been a happy person? | Voelde u zich gelukkig? | RAND9H | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Have you been a happy person? | Voelde u zich gelukkig? | rand_emotional_adu_q_09_h | RAND9H | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Did you feel tired? | Voelde u zich moe? | RAND9I | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | Did you feel tired? | Voelde u zich moe? | rand_energy_adu_q_09_i | RAND9I | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | Did you feel control over your life? | Voelde u controle over uw leven? | EQRAND9J | [[QEAR]] | 18+ | | + | | Did you feel control over your life? | Voelde u controle over uw leven? | | EQRAND9J | [[EARQ]] | 18+ | |
| - | | During the past 4 weeks, how much of the time has your Physical state or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)? | Hoe vaak hebben uw lichamelijke gezondheid of emotionele problemen gedurende de afgelopen 4 weken uw sociale activiteiten (zoals bezoek aan vrienden of naaste familieleden) belemmerd? | RAND10 | [[1A Questionnaire 1|1A]] [[2A Questionnaire 2|2A]] [[2B]] | 18+ | | + | | During the past 4 weeks, how much of the time has your Physical state or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)? | Hoe vaak hebben uw lichamelijke gezondheid of emotionele problemen gedurende de afgelopen 4 weken uw sociale activiteiten (zoals bezoek aan vrienden of naaste familieleden) belemmerd? | rand_social_adu_q_10(_v2) | RAND10 | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | True or False? | Waar of niet waar? | | | | | + | | True or False? | Waar of niet waar? | | | | | |
| - | | I seem to get sick a little easier than other people. | Ik lijk gemakkelijker ziek te worden dan andere mensen | RAND11A | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | I seem to get sick a little easier than other people. | Ik lijk gemakkelijker ziek te worden dan andere mensen | rand_perception_adu_q_11_a | RAND11A | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | I am as healthy as anybody I know. | Ik ben net zo gezond als andere mensen die ik ken | RAND11B | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | I am as healthy as anybody I know. | Ik ben net zo gezond als andere mensen die ik ken | rand_perception_adu_q_11_b | RAND11B | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | I expect my health to get worse. | Ik verwacht dat mijn gezondheid achteruit zal gaan | RAND11C | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | I expect my health to get worse. | Ik verwacht dat mijn gezondheid achteruit zal gaan | rand_perception_adu_q_11_c | RAND11C | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
| - | | My health is excellent. | Mijn gezondheid is uitstekend | RAND11D | [[1A Questionnaire 1|1A]] [[QEAR]] | 18+ | | + | | My health is excellent. | Mijn gezondheid is uitstekend | rand_perception_adu_q_11_d | RAND11D | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]] | 18+ | |
quality_of_life_rand.1573559340.txt.gz · Last modified: 2025/02/05 14:49 (external edit)
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