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quality_of_life_rand [2025/08/28 08:47] – [Variables] simonequality_of_life_rand [2025/09/01 13:20] (current) – [Background] simone
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 The additional items assess the general health perceived by participants (all on a 5-point Likert scale), either at the time of the questionnaire (RAND1), compared to a year ago (RAND2), or compared to the time of the previous questionnaire (RAND2A). The additional items assess the general health perceived by participants (all on a 5-point Likert scale), either at the time of the questionnaire (RAND1), compared to a year ago (RAND2), or compared to the time of the previous questionnaire (RAND2A).
 +
 +Please note, in assessment 3A, RAND6 and RAND8 were adapted to include the anwer option 'I do not know' (new code rand_social_adu_q_06_v2 / rand_social_adu_q_08_v2) to meet participants' wishes. 
 +Of note: in assessment 3A, RAND10 (rand_social_adu_q_10_v2) was mistakenly adapted to include the answer option 'often' (and not 'I do not know'). In addition, the variable received wrong enumerations in the data. On August 28th 2025, rand_social_adu_q_10_v2 was removed from the data catalogue and replaced by rand_social_adu_q_10_v2b, which includes the correct enumerations (as shown to participants in the questionnaire). Researchers who received rand_social_adu_q_10_v2 were informed (sept 2025).
 +
  
 ===== Scoring ===== ===== Scoring =====
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 See also: ((Ware JE, Koskinski M, Keller SD. SF-36 physical and mental health summary scales: A user's manual 2nd ed. The Health Institute, Boston MA: 1994)) and ((van der Zee K, Sanderman R, Heyink JW, de Haes H. Psychometric qualities of the RAND 36-item Health Survey 1.0: A Multidimensional Measure of General Health Status. Int J Behav Med 1996; 3(2):104-22)).\\  See also: ((Ware JE, Koskinski M, Keller SD. SF-36 physical and mental health summary scales: A user's manual 2nd ed. The Health Institute, Boston MA: 1994)) and ((van der Zee K, Sanderman R, Heyink JW, de Haes H. Psychometric qualities of the RAND 36-item Health Survey 1.0: A Multidimensional Measure of General Health Status. Int J Behav Med 1996; 3(2):104-22)).\\ 
  
-===== Papers using Lifelines RAND-36 data ===== 
- 
-  * Elderson, M.F., Pham, S., Eersel, M.E.A. van, Study, L.C., Wolffenbuttel, B.H.R., Kok, J., Gansevoort, R.T., Tucha, O., Klauw, M.M. van der, Slaets, J.P.J., et al. (2016). Agreement between Computerized and Human Assessment of Performance on the Ruff Figural Fluency Test. PLOS ONE 11, e0163286. 
-  * Janssens, K.A.M., Zijlema, W.L., Joustra, M.L., and Rosmalen, J.G.M. (2015). Mood and Anxiety Disorders in Chronic Fatigue Syndrome, Fibromyalgia, and Irritable Bowel Syndrome: Results From the LifeLines Cohort Study. Psychosom. Med. 77, 449–457. 
-  * Joustra, M.L., Janssens, K.A.M., Bültmann, U., and Rosmalen, J.G.M. (2015). Functional limitations in functional somatic syndromes and well-defined medical diseases. Results from the general population cohort LifeLines. J. Psychosom. Res. 79, 94–99. 
-  * Klaver, E.I., van Loon, H.C.M., Stienstra, R., Links, T.P., Keers, J.C., Kema, I.P., Kobold, A.C.M., van der Klauw, M.M., and Wolffenbuttel, B.H.R. (2013). Thyroid hormone status and health-related quality of life in the LifeLines Cohort Study. Thyroid Off. J. Am. Thyroid Assoc. 23, 1066–1073. 
-  * Klijs, B., Mendes de Leon, C.F., Kibele, E.U.B., and Smidt, N. (2017). Do social relations buffer the effect of neighborhood deprivation on health-related quality of life? Results from the LifeLines Cohort Study. Health Place 44, 43–51. 
-  * Müller, F., Hagedoorn, M., and Tuinman, M.A. (2017). Chronic multimorbidity impairs role functioning in middle-aged and older individuals mostly when non-partnered or living alone. PLOS ONE 12, e0170525. 
-  * Nigatu, Y.T., Reijneveld, S.A., Jonge, P. de, Rossum, E. van, and Bültmann, U. (2016). The Combined Effects of Obesity, Abdominal Obesity and Major Depression/Anxiety on Health-Related Quality of Life: the LifeLines Cohort Study. PLOS ONE 11, e0148871. 
-  * Peters, L.L., Boter, H., Burgerhof, J.G.M., Slaets, J.P.J., and Buskens, E. (2015). Construct validity of the Groningen Frailty Indicator established in a large sample of home-dwelling elderly persons: Evidence of stability across age and gender. Exp. Gerontol. 69, 129–141. 
-  * Slagter, S.N., van Vliet-Ostaptchouk, J.V., van Beek, A.P., Keers, J.C., Lutgers, H.L., van der Klauw, M.M., and Wolffenbuttel, B.H.R. (2015). Health-Related Quality of Life in Relation to Obesity Grade, Type 2 Diabetes, Metabolic Syndrome and Inflammation. PloS One 10, e0140599. 
-  * Wouters, H.J.C.M., van Loon, H.C.M., van der Klauw, M.M., Elderson, M.F., Slagter, S.N., Kobold, A.M., Kema, I.P., Links, T.P., van Vliet-Ostaptchouk, J.V., and Wolffenbuttel, B.H.R. (2016). No Effect of the Thr92Ala Polymorphism of Deiodinase-2 on Thyroid Hormone Parameters, Health-Related Quality of Life, and Cognitive Functioning in a Large Population-Based Cohort Study. Thyroid 27, 147–155. 
-  * van Zon, S.K.R., Bültmann, U., Mendes de Leon, C.F., and Reijneveld, S.A. (2015). Absolute and Relative Socioeconomic Health Inequalities across Age Groups. PloS One 10, e0145947. 
-  * van Zon, S.K.R., Reijneveld, S.A., Mendes de Leon, C.F., and Bültmann, U. (2017b). The impact of low education and poor health on unemployment varies by work life stage. Int. J. Public Health. 
  
 ===== Variables ===== ===== Variables =====
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 | Accomplished less than you would like.                                                                                                                                             | U hebt minder bereikt dan u zou willen                                                                                                                                                   | rand_limitations_adu_q_05_b     | RAND5B        | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      | | Accomplished less than you would like.                                                                                                                                             | U hebt minder bereikt dan u zou willen                                                                                                                                                   | rand_limitations_adu_q_05_b     | RAND5B        | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |
 | Didn't do work or other activities as carefully as usual.                                                                                                                          | U hebt het werk of andere bezigheden niet zo zorgvuldig gedaan als u gewend bent                                                                                                         | rand_limitations_adu_q_05_c     | RAND5C        | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      | | Didn't do work or other activities as carefully as usual.                                                                                                                          | U hebt het werk of andere bezigheden niet zo zorgvuldig gedaan als u gewend bent                                                                                                         | rand_limitations_adu_q_05_c     | RAND5C        | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |
-| During the past 4 weeks, to what extent has your Physical state or emotional problems interfered with your normal social activities with family, friends, neighbors, or groups?    | In hoeverre heeft uw lichamelijke gezondheid of hebben uw emotionele problemen u de afgelopen 4 weken belemmerd in uw normale sociale bezigheden met gezin, vrienden, buren of anderen?  | rand_social_adu_q_06(_v2)       | RAND6         | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |+| During the past 4 weeks, to what extent has your Physical state or emotional problems interfered with your normal social activities with family, friends, neighbors, or groups?    | In hoeverre heeft uw lichamelijke gezondheid of hebben uw emotionele problemen u de afgelopen 4 weken belemmerd in uw normale sociale bezigheden met gezin, vrienden, buren of anderen?  | rand_social_adu_q_06(_v2) *     | RAND6         | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |
 | How much bodily pain have you had during the past 4 weeks?                                                                                                                         | Hoeveel pijn had u de afgelopen 4 weken?                                                                                                                                                 | rand_pain_adu_q_07              | RAND7         | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      | | How much bodily pain have you had during the past 4 weeks?                                                                                                                         | Hoeveel pijn had u de afgelopen 4 weken?                                                                                                                                                 | rand_pain_adu_q_07              | RAND7         | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |
-| During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)?                                                   | In welke mate heeft pijn u de afgelopen vier weken belemmerd bij uw normale werkzaamheden (zowel werk buitenshuis als huishoudelijk werk)?                                               | rand_pain_adu_q_08(_v2)         | RAND8         | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |+| During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)?                                                   | In welke mate heeft pijn u de afgelopen vier weken belemmerd bij uw normale werkzaamheden (zowel werk buitenshuis als huishoudelijk werk)?                                               | rand_pain_adu_q_08(_v2) *       | RAND8         | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |
 | How much of the time during the past 4 weeks                                                                                                                                       | Hoe heeft u zich de afgelopen 4 weken gevoeld?                                                                                                                                           |                                 |               | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              |          | | How much of the time during the past 4 weeks                                                                                                                                       | Hoe heeft u zich de afgelopen 4 weken gevoeld?                                                                                                                                           |                                 |               | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              |          |
 | Did you feel full of pep?                                                                                                                                                          | Voelde u zich levenslustig?                                                                                                                                                              | rand_energy_adu_q_09_a          | RAND9A        | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      | | Did you feel full of pep?                                                                                                                                                          | Voelde u zich levenslustig?                                                                                                                                                              | rand_energy_adu_q_09_a          | RAND9A        | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |
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 | I expect my health to get worse.                                                                                                                                                   | Ik verwacht dat mijn gezondheid achteruit zal gaan                                                                                                                                       | rand_perception_adu_q_11_c      | RAND11C       | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      | | I expect my health to get worse.                                                                                                                                                   | Ik verwacht dat mijn gezondheid achteruit zal gaan                                                                                                                                       | rand_perception_adu_q_11_c      | RAND11C       | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |
 | My health is excellent.                                                                                                                                                            | Mijn gezondheid is uitstekend                                                                                                                                                            | rand_perception_adu_q_11_d      | RAND11D       | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      | | My health is excellent.                                                                                                                                                            | Mijn gezondheid is uitstekend                                                                                                                                                            | rand_perception_adu_q_11_d      | RAND11D       | [[1A Questionnaire 1|1A]] [[3A Questionnaire 1|3A]] [[EARQ]]                                                                                                                              | 18+      |
-* Note that on August 28th 2025 rand_social_adu_q_10_v2 was replaced by rand_social_adu_q_10_v2b in the Lifelines data due to rand_social_adu_q_10_v2 containing incorrect enumerations.+* See remark in Background 
 + 
 + 
 +===== Papers using Lifelines RAND-36 data ===== 
 + 
 +  * Elderson, M.F., Pham, S., Eersel, M.E.A. van, Study, L.C., Wolffenbuttel, B.H.R., Kok, J., Gansevoort, R.T., Tucha, O., Klauw, M.M. van der, Slaets, J.P.J., et al. (2016). Agreement between Computerized and Human Assessment of Performance on the Ruff Figural Fluency Test. PLOS ONE 11, e0163286. 
 +  * Janssens, K.A.M., Zijlema, W.L., Joustra, M.L., and Rosmalen, J.G.M. (2015). Mood and Anxiety Disorders in Chronic Fatigue Syndrome, Fibromyalgia, and Irritable Bowel Syndrome: Results From the LifeLines Cohort Study. Psychosom. Med. 77, 449–457. 
 +  * Joustra, M.L., Janssens, K.A.M., Bültmann, U., and Rosmalen, J.G.M. (2015). Functional limitations in functional somatic syndromes and well-defined medical diseases. Results from the general population cohort LifeLines. J. Psychosom. Res. 79, 94–99. 
 +  * Klaver, E.I., van Loon, H.C.M., Stienstra, R., Links, T.P., Keers, J.C., Kema, I.P., Kobold, A.C.M., van der Klauw, M.M., and Wolffenbuttel, B.H.R. (2013). Thyroid hormone status and health-related quality of life in the LifeLines Cohort Study. Thyroid Off. J. Am. Thyroid Assoc. 23, 1066–1073. 
 +  * Klijs, B., Mendes de Leon, C.F., Kibele, E.U.B., and Smidt, N. (2017). Do social relations buffer the effect of neighborhood deprivation on health-related quality of life? Results from the LifeLines Cohort Study. Health Place 44, 43–51. 
 +  * Müller, F., Hagedoorn, M., and Tuinman, M.A. (2017). Chronic multimorbidity impairs role functioning in middle-aged and older individuals mostly when non-partnered or living alone. PLOS ONE 12, e0170525. 
 +  * Nigatu, Y.T., Reijneveld, S.A., Jonge, P. de, Rossum, E. van, and Bültmann, U. (2016). The Combined Effects of Obesity, Abdominal Obesity and Major Depression/Anxiety on Health-Related Quality of Life: the LifeLines Cohort Study. PLOS ONE 11, e0148871. 
 +  * Peters, L.L., Boter, H., Burgerhof, J.G.M., Slaets, J.P.J., and Buskens, E. (2015). Construct validity of the Groningen Frailty Indicator established in a large sample of home-dwelling elderly persons: Evidence of stability across age and gender. Exp. Gerontol. 69, 129–141. 
 +  * Slagter, S.N., van Vliet-Ostaptchouk, J.V., van Beek, A.P., Keers, J.C., Lutgers, H.L., van der Klauw, M.M., and Wolffenbuttel, B.H.R. (2015). Health-Related Quality of Life in Relation to Obesity Grade, Type 2 Diabetes, Metabolic Syndrome and Inflammation. PloS One 10, e0140599. 
 +  * Wouters, H.J.C.M., van Loon, H.C.M., van der Klauw, M.M., Elderson, M.F., Slagter, S.N., Kobold, A.M., Kema, I.P., Links, T.P., van Vliet-Ostaptchouk, J.V., and Wolffenbuttel, B.H.R. (2016). No Effect of the Thr92Ala Polymorphism of Deiodinase-2 on Thyroid Hormone Parameters, Health-Related Quality of Life, and Cognitive Functioning in a Large Population-Based Cohort Study. Thyroid 27, 147–155. 
 +  * van Zon, S.K.R., Bültmann, U., Mendes de Leon, C.F., and Reijneveld, S.A. (2015). Absolute and Relative Socioeconomic Health Inequalities across Age Groups. PloS One 10, e0145947. 
 +  * van Zon, S.K.R., Reijneveld, S.A., Mendes de Leon, C.F., and Bültmann, U. (2017b). The impact of low education and poor health on unemployment varies by work life stage. Int. J. Public Health. 
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