skin_conditions
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| skin_conditions [2023/05/04 07:30] – [Table] laura | skin_conditions [2025/09/18 12:34] (current) – [Table] petra_vinke | ||
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| ====== Skin conditions ====== | ====== Skin conditions ====== | ||
| - | [[start|Lifelines]] participants | + | Adult[[start|Lifelines]] participants were asked whether they suffered from skin conditions such as eczema or psoriasis | 
| Note questions on skin conditions were also a relatively large part of the [[additional assessments|additional questionnaire]] [[SKIQ]] (see below).\\ | Note questions on skin conditions were also a relatively large part of the [[additional assessments|additional questionnaire]] [[SKIQ]] (see below).\\ | ||
| Note that Lifelines also assessed general [[skin (QSKIN)|skin properties]] of adult participants, | Note that Lifelines also assessed general [[skin (QSKIN)|skin properties]] of adult participants, | ||
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| ===== Variables ===== | ===== Variables ===== | ||
| === General variables === | === General variables === | ||
| - | | **Label English** | + | | **Label English** | 
| - | | eczema / could you indicate which of the following disorders you have (had)? | + | | eczema / could you indicate which of the following disorders you have (had)? | 
| - | | psoriasis / could you indicate which of the following disorders you have (had)? | + | | psoriasis / could you indicate which of the following disorders you have (had)? | 
| - | | Have you ever received a diagnosis of psoriasis? | + | | Have you ever received a diagnosis of psoriasis? | 
| - | | Have you ever received a diagnosis of hideradenitis suppurativa (HS)?                                                                                               | Hebt u ooit de diagnose hidradenitis suppurativa (HS) gekregen? | + | | Have you ever received a diagnosis of hideradenitis suppurativa (HS)?                                                                                               | Hebt u ooit de diagnose hidradenitis suppurativa (HS) gekregen? | 
| - | | Have you ever had painful, recurrent abscesses or inflammations in your armpits, groins, or buttocks or at other locations as shown in the images above? | + | | Have you ever had painful, recurrent abscesses or inflammations in your armpits, groins, or buttocks or at other locations as shown in the images above? | 
| - | | Have you ever had at least 2 outbreaks of abscesses within a period of 6 months? | + | | Have you ever had at least 2 outbreaks of abscesses within a period of 6 months? | 
| - | | In the past year, did you suffer from an itch that persisted for more than 6 weeks? | + | | In the past year, did you suffer from an itch that persisted for more than 6 weeks? | 
| - | | Have you ever undergone an allergy test using patches on the skin of your back?                                                                                     | Is er ooit een allergietest door middel van plakproeven uitgevoerd op de huid van uw rug?                                                                                          | skinallergy_patchtest_adu_q_1 | + | | Have you ever undergone an allergy test using patches on the skin of your back?                                                                                     | Is er ooit een allergietest door middel van plakproeven uitgevoerd op de huid van uw rug?                                                                                          | skinallergy_patchtest_adu_q_1 | 
| - | | What was the result of the patch test?                                                                                                                              | Wat was de uitslag van de plaktest? | + | | What was the result of the patch test?                                                                                                                              | Wat was de uitslag van de plaktest? | 
| - | | Was the patch test positive for a component of hair dye?                                                                                                            | Was de plaktest positief voor een bestandsdeel van haarverf? | + | | Was the patch test positive for a component of hair dye?                                                                                                            | Was de plaktest positief voor een bestandsdeel van haarverf? | 
| - | | Did your skin ever (in your lifetime) react to the use of hair dye?                                                                                                 | Hebt u ooit een huidreactie gehad na het gebruik van haarverf? | + | | Did your skin ever (in your lifetime) react to the use of hair dye?                                                                                                 | Hebt u ooit een huidreactie gehad na het gebruik van haarverf? | 
| - | | Mild skin reaction (redness, flaking, itching) on the scalp, in the face, near the ears or the neck) / What was the reaction to the hair dye?                       | Milde huidreactie (roodheid, schilfering, | + | | Mild skin reaction (redness, flaking, itching) on the scalp, in the face, near the ears or the neck) / What was the reaction to the hair dye?                       | Milde huidreactie (roodheid, schilfering, | 
| - | | Strong skin reaction (redness, flaking, itching, swelling, weeping) on the scalp, in the face, near the ears or the neck) / What was the reaction to the hair dye?  | Sterke huidreactie (roodheid, schilfering, | + | | Strong skin reaction (redness, flaking, itching, swelling, weeping) on the scalp, in the face, near the ears or the neck) / What was the reaction to the hair dye?  | Sterke huidreactie (roodheid, schilfering, | 
| - | | Skin reaction on the hands (redness, flaking, itching) / What was the reaction to the hair dye?                                                                     | Huidreactie op de handen (roodheid, schilfering, | + | | Skin reaction on the hands (redness, flaking, itching) / What was the reaction to the hair dye?                                                                     | Huidreactie op de handen (roodheid, schilfering, | 
| - | | Other reaction: / What was the reaction to the hair dye?                                                                                                            | Anders, nl. / Wat was de reactie op de haarverf? | + | | Other reaction: / What was the reaction to the hair dye?                                                                                                            | Anders, nl. / Wat was de reactie op de haarverf? | 
| - | | Did your skin ever react to a temporary black henna tattoo? | + | | Did your skin ever react to a temporary black henna tattoo? | 
| - | | What was the reaction to the temporary black henna tattoo? | + | | What was the reaction to the temporary black henna tattoo? | 
| \\ | \\ | ||
| === Additional variables in SKIQ=== | === Additional variables in SKIQ=== | ||
| - | | **Label English** | + | | **Label English** | 
| - | | have you ever (now or in the past) had symptoms of asthma or hay fever? | + | | have you ever (now or in the past) had symptoms of asthma or hay fever? | 
| - | | have you ever been diagnosed with atopic dermatitis or atopic eczema by a doctor? | + | | have you ever been diagnosed with atopic dermatitis or atopic eczema by a doctor? | 
| - | | at what age did this itchy skinrash first occur? | + | | at what age did this itchy skinrash first occur? | 
| - | | has the skin disease ever affected the skin creases (e.g. folds of elbows, behind the knees, fronts of ankles, under buttocks, around the neck, ears, or eyes)? | + | | has the skin disease ever affected the skin creases (e.g. folds of elbows, behind the knees, fronts of ankles, under buttocks, around the neck, ears, or eyes)? | 
| - | | have you ever had an itchy rash that varied in severity? | + | | have you ever had an itchy rash that varied in severity? | 
| - | | have you had a dry skin in the past 12 months? | + | | have you had a dry skin in the past 12 months? | 
| - | | i have never had medication for eczema / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | + | | i have never had medication for eczema / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | 
| - | | prednisolon / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | + | | prednisolon / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | 
| - | | ciclosporin (neoral) / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | + | | ciclosporin (neoral) / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | 
| - | | methotrexate / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | + | | methotrexate / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | 
| - | | azathioprine (imuran) / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | + | | azathioprine (imuran) / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | 
| - | | mycophenolate (cellcept)/ | + | | mycophenolate (cellcept)/ | 
| - | | dupilumab (dupixent) / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | + | | dupilumab (dupixent) / which of the following medications (pills, capsules, injections) have you ever received for your atopic dermatitis/ | 
| - | | would you describe your eczema as mild, moderate or severe? | + | | would you describe your eczema as mild, moderate or severe? | 
| - | | at work / on an average day how many hours do your hands come into direct contact with water, fluids and/or moist products? (e.g. during washing your hands) | + | | at work / on an average day how many hours do your hands come into direct contact with water, fluids and/or moist products? (e.g. during washing your hands) | 
| - | | at home / on an average day how many hours do your hands come into direct contact with water, fluids and/or moist products? (e.g. during washing your hands) | + | | at home / on an average day how many hours do your hands come into direct contact with water, fluids and/or moist products? (e.g. during washing your hands) | 
| - | | at work / on an average day, how many hours do you wear gloves that are impermeable to fluids? | + | | at work / on an average day, how many hours do you wear gloves that are impermeable to fluids? | 
| - | | at home / on an average day, how many hours do you wear gloves that are impermeable to fluids? | + | | at home / on an average day, how many hours do you wear gloves that are impermeable to fluids? | 
| - | | at work / on an average day, how often do you wash your hands? | + | | at work / on an average day, how often do you wash your hands? | 
| - | | at home / on an average day, how often do you wash your hands? | + | | at home / on an average day, how often do you wash your hands? | 
| - | | during the past 12 months, did you have to call in sick for work because of your hand eczema? | + | | during the past 12 months, did you have to call in sick for work because of your hand eczema? | 
| - | | during the past 12 months, did you go to work despite feeling that you should have taken sick leave because of your hand eczema? | + | | during the past 12 months, did you go to work despite feeling that you should have taken sick leave because of your hand eczema? | 
| - | | how would you describe the activity of your skin symptoms at this moment? (diagnosed hs)                                                                                                   | hoe zou u de activiteit van uw huidklachten op dit moment omschrijven? | + | | how would you describe the activity of your skin symptoms at this moment? (diagnosed hs)                                                                                                   | hoe zou u de activiteit van uw huidklachten op dit moment omschrijven? | 
| - | | how would you describe the activity of your skin symptoms at this moment? (undiagnosed hs)                                                                                                 | hoe zou u de activiteit van uw huidklachten op dit moment omschrijven? | + | | how would you describe the activity of your skin symptoms at this moment? (undiagnosed hs)                                                                                                 | hoe zou u de activiteit van uw huidklachten op dit moment omschrijven? | 
| - | | when you look at the pictures below, showing a classification of hs, in which category would you place yourself? | + | | when you look at the pictures below, showing a classification of hs, in which category would you place yourself? | 
| - | | how would you describe the course of your skin symptoms since the start of your skin disease? (diagnosed hs)                                                                               | hoe zou u het verloop van uw huidklachten beschrijven sinds het begin van de huidziekte? (gediagnosticeerd hs)                                                                                 | hidradenitis_course_adu_q_1 | + | | how would you describe the course of your skin symptoms since the start of your skin disease? (diagnosed hs)                                                                               | hoe zou u het verloop van uw huidklachten beschrijven sinds het begin van de huidziekte? (gediagnosticeerd hs)                                                                                 | hidradenitis_course_adu_q_1 | 
| - | | how would you describe the course of your skinsymptoms since the start of your skin disease? (undiagnosed hs)                                                                              | hoe zou u het verloop van uw huidklachten beschrijven sinds het begin van de huidziekte? (ongediagnosticeerd hs)                                                                               | hidradenitis_course_adu_q_2 | + | | specification other course / how would you describe the course of your skin symptoms since the start of your skin disease? (diagnosed hs)                                                  | specificatie ander verloop / hoe zou u het verloop van uw huidklachten beschrijven sinds het begin van de huidziekte? (gediagnosticeerd hs)                                                    | hidradenitis_course_adu_q_1_a | 
| - | | did you ever (during your life) get the diagnosis of hidradenitis suppurativa (hs)?                                                                                                        | hebt u ooit (gedurende het leven) de diagnose hidradenitis suppurativa (hs) gekregen? | + | | how would you describe the course of your skinsymptoms since the start of your skin disease? (undiagnosed hs)                                                                              | hoe zou u het verloop van uw huidklachten beschrijven sinds het begin van de huidziekte? (ongediagnosticeerd hs)                                                                               | hidradenitis_course_adu_q_2 | 
| - | | who diagnosed your hs? / did you ever (during your life) get the diagnosis of hidradenitis suppurativa (hs)                                                                                | wie heeft de diagnose hs bij uw gesteld? / hebt u ooit (gedurende het leven) de diagnose hidradenitis suppurativa (hs) gekregen? | + | | specification other course / how would you describe the course of your skinsymptoms since the start of your skin disease? (undiagnosed hs)                                                 | specificatie ander verloop / hoe zou u het verloop van uw huidklachten beschrijven sinds het begin van de huidziekte? (ongediagnosticeerd hs)                                                  | hidradenitis_course_adu_q_2_a | 
| - | | did one of your direct family members (father/ | + | | did you ever (during your life) get the diagnosis of hidradenitis suppurativa (hs)?                                                                                                        | hebt u ooit (gedurende het leven) de diagnose hidradenitis suppurativa (hs) gekregen? | 
| - | | armpit(s) / on which locations/ | + | | who diagnosed your hs? / did you ever (during your life) get the diagnosis of hidradenitis suppurativa (hs)                                                                                | wie heeft de diagnose hs bij uw gesteld? / hebt u ooit (gedurende het leven) de diagnose hidradenitis suppurativa (hs) gekregen? | 
| - | | under the breasts / on which locations/ | + | | specification other person / who diagnosed your hs?                                                                                                                                        | specificatie andere persoon / wie heeft de diagnose hs bij uw gesteld? | 
| - | | inguinal folds / on which locations/ | + | | did one of your direct family members (father/ | 
| - | | mons pubis/labia (v)/scrotum (m) / on which locations/ | + | | armpit(s) / on which locations/ | 
| - | | buttocks / on which locations/ | + | | under the breasts / on which locations/ | 
| - | | other location: / on which locations/ | + | | inguinal folds / on which locations/ | 
| - | | at the moment the skin is calm / on which locations/ | + | | mons pubis/labia (v)/scrotum (m) / on which locations/ | 
| - | | armpit(s) / on which locations/ | + | | buttocks / on which locations/ | 
| - | | under the breasts / on which locations/ | + | | other location: / on which locations/ | 
| - | | inguinal folds / on which locations/ | + | | [[SKIQ]] | 
| - | | mons pubis/labia (v)/scrotum (m) / on which locations/ | + | | at the moment the skin is calm / on which locations/ | 
| - | | buttocks / on which locations/ | + | | armpit(s) / on which locations/ | 
| - | | other location: / on which locations/ | + | | under the breasts / on which locations/ | 
| - | | what is the reason why you are not receiving treatment at the moment? | + | | inguinal folds / on which locations/ | 
| - | | gp / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                                   | huisarts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                          | hidradenitis_pasttreatment_adu_q_1_a | + | | mons pubis/labia (v)/scrotum (m) / on which locations/ | 
| - | | dermatologist / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                        | dermatoloog / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                       | hidradenitis_pasttreatment_adu_q_1_b | + | | buttocks / on which locations/ | 
| - | | surgeon / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                              | chirurg / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                           | hidradenitis_pasttreatment_adu_q_1_c | + | | other location: / on which locations/ | 
| - | | plastic surgeon / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                      | plastisch chirurg / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                 | hidradenitis_pasttreatment_adu_q_1_d | + | | specification other location(s) / on which locations/ | 
| - | | gynaecologist / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                        | gynaecoloog / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                       | hidradenitis_pasttreatment_adu_q_1_e | + | | what is the reason why you are not receiving treatment at the moment? | 
| - | | emergency room (er) doctor / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                           | spoedeisende hulp (seh) arts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                      | hidradenitis_pasttreatment_adu_q_1_f | + | | specification other reason / what is the reason why you are not receiving treatment at the moment? | 
| - | | other doctor: / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                        | anders, nl. / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                       | hidradenitis_pasttreatment_adu_q_1_g | + | | gp / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                                   | huisarts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                          | hidradenitis_pasttreatment_adu_q_1_a | 
| - | | gp / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                                   | huisarts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                        | hidradenitis_pasttreatment_adu_q_2_a | + | | dermatologist / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                        | dermatoloog / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                       | hidradenitis_pasttreatment_adu_q_1_b | 
| - | | dermatologist / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                        | dermatoloog / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                     | hidradenitis_pasttreatment_adu_q_2_b | + | | surgeon / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                              | chirurg / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                           | hidradenitis_pasttreatment_adu_q_1_c | 
| - | | surgeon / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                              | chirurg / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                         | hidradenitis_pasttreatment_adu_q_2_c | + | | plastic surgeon / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                      | plastisch chirurg / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                 | hidradenitis_pasttreatment_adu_q_1_d | 
| - | | plastic surgeon / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                      | plastisch chirurg / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                               | hidradenitis_pasttreatment_adu_q_2_d | + | | gynaecologist / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                        | gynaecoloog / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                       | hidradenitis_pasttreatment_adu_q_1_e | 
| - | | gynaecologist / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                        | gynaecoloog / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                     | hidradenitis_pasttreatment_adu_q_2_e | + | | emergency room (er) doctor / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                           | spoedeisende hulp (seh) arts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                      | hidradenitis_pasttreatment_adu_q_1_f | 
| - | | emergency room (er) doctor / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                           | spoedeisende hulp (seh) arts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                    | hidradenitis_pasttreatment_adu_q_2_f | + | | other doctor: / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                                        | anders, nl. / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                                       | hidradenitis_pasttreatment_adu_q_1_g | 
| - | | none / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                                 | geen / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                            | hidradenitis_pasttreatment_adu_q_2_g | + | | specification other doctor / what kind of doctor(s) have treated you in the past? (diagnosed hs)                                                                                           | specificatie andere arts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (gediagnosticeerd hs)                                                                          | hidradenitis_pasttreatment_adu_q_1_g1 | 
| - | | other doctor: / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                        | anders, nl. / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                     | hidradenitis_pasttreatment_adu_q_2_h | + | | gp / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                                   | huisarts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                        | hidradenitis_pasttreatment_adu_q_2_a | 
| - | | how would you score the severity of your hs? see for this also the images above (undiagnosed hs)                                                                                           | hoe zou u zelf de ernst van uw hs inschatten? zie hiervoor ook de afbeeldingen hierboven (ongediagnosticeerd hs)                                                                               | hidradenitis_severity_adu_q_2 | + | | dermatologist / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                        | dermatoloog / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                     | hidradenitis_pasttreatment_adu_q_2_b | 
| - | | at what age (approximately) did you get hidradenitis suppurative symptoms for the first time? (diagnosed hs)                                                                               | op welke leeftijd begonnen de klachten van hidradenitis suppurativa (bij benadering)? | + | | surgeon / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                              | chirurg / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                         | hidradenitis_pasttreatment_adu_q_2_c | 
| - | | at what age did these skin symptoms start (make an estimation)? | + | | plastic surgeon / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                      | plastisch chirurg / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                               | hidradenitis_pasttreatment_adu_q_2_d | 
| - | | do you repeatedly have painful abscesses or inflammations in your armpits, groins, or buttocks or at other locations as shown in the images below? (undiagnosed hs)                        | hebt u pijnlijke, herhaaldelijk terugkerende abcessen of ontstekingen in de oksels, liezen of billen of op andere plekken zoals te zien op onderstaande afbeeldingen? | + | | gynaecologist / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                        | gynaecoloog / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                     | hidradenitis_pasttreatment_adu_q_2_e | 
| - | | did you have a minimum of 2 outbreaks of abscesses or inflammations within a period of 6 months? (undiagnosed hs)                                                                          | hebt u minimaal 2 uitbraken gehad van abcessen of ontstekingen in een periode van 6 maanden? (ongediagnosticeerd hs)                                                                           | hidradenitis_symptoms_adu_q_2_b | + | | emergency room (er) doctor / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                           | spoedeisende hulp (seh) arts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                    | hidradenitis_pasttreatment_adu_q_2_f | 
| - | | are you currently receiving treatment for hidradenitis suppurativa? | + | | none / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                                 | geen / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                            | hidradenitis_pasttreatment_adu_q_2_g | 
| - | | gp / what kind of doctor is currently treating you?                                                                                                                                        | huisarts / bij wat voor soort arts bent u op dit moment onder behandeling? | + | | other doctor: / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                                        | anders, nl. / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                                     | hidradenitis_pasttreatment_adu_q_2_h | 
| - | | dermatologist / what kind of doctor is currently treating you?                                                                                                                             | dermatoloog / bij wat voor soort arts bent u op dit moment onder behandeling? | + | | specification other doctor / what kind of doctors have treated you in the past? (undiagnosed hs)                                                                                           | specificatie andere arts / bij welke arts(en) bent u in het verleden onder behandeling geweest? (ongediagnosticeerd hs)                                                                        | hidradenitis_pasttreatment_adu_q_2_h1 | 
| - | | surgeon / what kind of doctor is currently treating you?                                                                                                                                   | chirurg / bij wat voor soort arts bent u op dit moment onder behandeling? | + | | how would you score the severity of your hs? see for this also the images above (undiagnosed hs)                                                                                           | hoe zou u zelf de ernst van uw hs inschatten? zie hiervoor ook de afbeeldingen hierboven (ongediagnosticeerd hs)                                                                               | hidradenitis_severity_adu_q_2 | 
| - | | plastic surgeon / what kind of doctor is currently treating you?                                                                                                                           | plastisch chirurg / bij wat voor soort arts bent u op dit moment onder behandeling? | + | | at what age (approximately) did you get hidradenitis suppurative symptoms for the first time? (diagnosed hs)                                                                               | op welke leeftijd begonnen de klachten van hidradenitis suppurativa (bij benadering)? | 
| - | | gynaecologist / what kind of doctor is currently treating you?                                                                                                                             | gynaecoloog / bij wat voor soort arts bent u op dit moment onder behandeling? | + | | at what age did these skin symptoms start (make an estimation)? | 
| - | | other doctor: / what kind of doctor is currently treating you?                                                                                                                             | anders, nl. / bij wat voor soort arts bent u op dit moment onder behandeling? | + | | do you repeatedly have painful abscesses or inflammations in your armpits, groins, or buttocks or at other locations as shown in the images below? (undiagnosed hs)                        | hebt u pijnlijke, herhaaldelijk terugkerende abcessen of ontstekingen in de oksels, liezen of billen of op andere plekken zoals te zien op onderstaande afbeeldingen? | 
| - | | i am currently not receiving treatment / what kind of doctor is currently treating you?                                                                                                    | op dit moment ben ik niet onder behandeling / bij wat voor soort arts bent u op dit moment onder behandeling? | + | | did you have a minimum of 2 outbreaks of abscesses or inflammations within a period of 6 months? (undiagnosed hs)                                                                          | hebt u minimaal 2 uitbraken gehad van abcessen of ontstekingen in een periode van 6 maanden? (ongediagnosticeerd hs)                                                                           | hidradenitis_symptoms_adu_q_2_b | 
| - | | did you ever (during your life) get the diagnosis of polycystic ovary syndrome (pcos)? | + | | are you currently receiving treatment for hidradenitis suppurativa? | 
| - | | did you ever (during your life) get the diagnosis of psoriasis? | + | | gp / what kind of doctor is currently treating you?                                                                                                                                        | huisarts / bij wat voor soort arts bent u op dit moment onder behandeling? | 
| - | | have you ever had a skin reaction after dyeing your hair (or after dyeing your eyelashes/ | + | | dermatologist / what kind of doctor is currently treating you?                                                                                                                             | dermatoloog / bij wat voor soort arts bent u op dit moment onder behandeling? | 
| - | | what kind of reaction to hairdye did you have?                                                                                                                                             | wat was de reactie op de haarverf? | + | | surgeon / what kind of doctor is currently treating you?                                                                                                                                   | chirurg / bij wat voor soort arts bent u op dit moment onder behandeling? | 
| - | | have you ever had a skin reaction after a temporary black henna tattoo? | + | | plastic surgeon / what kind of doctor is currently treating you?                                                                                                                           | plastisch chirurg / bij wat voor soort arts bent u op dit moment onder behandeling? | 
| - | | what kind of reaction to the temporary black henna tattoo did you have?                                                                                                                    | wat was de reactie op de tijdelijke zwarte henna tatoeage? | + | | gynaecologist / what kind of doctor is currently treating you?                                                                                                                             | gynaecoloog / bij wat voor soort arts bent u op dit moment onder behandeling? | 
| - | | was the patch test positive for ingredients of hair dye/black henna? | + | | other doctor: / what kind of doctor is currently treating you?                                                                                                                             | anders, nl. / bij wat voor soort arts bent u op dit moment onder behandeling? | 
| - | | vitiligo / have you been diagnosed with any of the following skin diseases by a dermatologist (skin doctor) or an allergologist (allergy doctor)? | + | | specification other doctor / what kind of doctor is currently treating you?                                                                                                                | specificatie andere arts / bij wat voor soort arts bent u op dit moment onder behandeling? | 
| - | | alopecia areata / have you been diagnosed with any of the following skin diseases by a dermatologist (skin doctor) or an allergologist (allergy doctor)? | + | | i am currently not receiving treatment / what kind of doctor is currently treating you?                                                                                                    | op dit moment ben ik niet onder behandeling / bij wat voor soort arts bent u op dit moment onder behandeling? | 
| - | | chronic urticaria / have you been diagnosed with any of the following skin diseases by a dermatologist (skin doctor) or an allergologist (allergy doctor)? | + | | did you ever (during your life) get the diagnosis of polycystic ovary syndrome (pcos)? | 
| - | | i was not diagnosed with any of these diseases / have you been diagnosed with any of the following skin diseases by a dermatologist (skin doctor) or an allergologist (allergy doctor)? | + | | did you ever (during your life) get the diagnosis of psoriasis? | 
| + | | have you ever had a skin reaction after dyeing your hair (or after dyeing your eyelashes/ | ||
| + | | what kind of reaction to hairdye did you have?                                                                                                                                             | wat was de reactie op de haarverf? | ||
| + | | specification other reaction / what kind of reaction to hairdye did you have?                                                                                                              | specificatie andere reactie / wat was de reactie op de haarverf? | ||
| + | | have you ever had a skin reaction after a temporary black henna tattoo? | ||
| + | | what kind of reaction to the temporary black henna tattoo did you have?                                                                                                                    | wat was de reactie op de tijdelijke zwarte henna tatoeage? | ||
| + | | specification other reaction / what kind of reaction to the temporary black henna tattoo did you have?                                                                                     | anders, wat was de reactie op de tijdelijke zwarte henna tatoeage? | ||
| + | | was the patch test positive for ingredients of hair dye/black henna? | ||
| + | | vitiligo / have you been diagnosed with any of the following skin diseases by a dermatologist (skin doctor) or an allergologist (allergy doctor)? | ||
| + | | alopecia areata / have you been diagnosed with any of the following skin diseases by a dermatologist (skin doctor) or an allergologist (allergy doctor)? | ||
| + | | chronic urticaria / have you been diagnosed with any of the following skin diseases by a dermatologist (skin doctor) or an allergologist (allergy doctor)? | ||
| + | | i was not diagnosed with any of these diseases / have you been diagnosed with any of the following skin diseases by a dermatologist (skin doctor) or an allergologist (allergy doctor)? | ||
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| === Child variables === | === Child variables === | ||
| - | | **Label English** | + | | **Label English** | 
| - | | excessive perspiration, | + | |                    | Heeft uw kind ooit een jeukende huiduitslag gehad die wisselend aanwezig was?  | | 
| - | | excessive sweating / can you indicate how much your child suffered from the types of physical pain listed below in the past year?  | overmatig transpireren, | + | |                    | Hoeveel weken oud was uw kind toen dat voor het eerst gebeurde? | 
| - | | fungal infections / did your child receive medical treatment for this when it was between 6 months and 3 years old?                | schimmelinfecties / is uw kind hiervoor behandeld door een dokter in de leeftijd van 6 maanden t/m 3 jaar?                        | mycosis_treatment_ch1a_q_1 | + | |                    | Hoeveel maanden oud was uw kind toen dat voor het eerst gebeurde? | 
| - | | fungal infections / did your child use any medication for this when it was between 6 months and 3 years old?                       | schimmelinfecties / gebruikte uw kind hiervoor medicijnen in de leeftijd van 6 maanden t/m 3 jaar?                                | mycosis_medication_ch1a_q_1 | + | |                    | Heeft uw kind deze jeukende uitslag (bijna) constant gehad? | 
| - | | fungal infections / did your child receive medical treatment for this from the age of 4 until the present? | + | |                    | De binnenkant van de ellebogen | 
| - | | fungal infections / did your child use any medication for this from the age of 4 until the present? | + | |                    | De knieholtes | 
| - | | fungal infections / did your child receive medical treatment for this when it was between 4 and 7 years old?                       | schimmelinfecties / is uw kind hiervoor behandeld door een dokter in de leeftijd van 4 t/m 7 jaar?                                | mycosis_treatment_ch2a_q_1 | + | |                    | De voorkant van de enkels | 
| - | | fungal infections / did your child use any medication for this when it was between 4 and 7 years old?                              | schimmelinfecties / gebruikte uw kind hiervoor medicijnen in de leeftijd van 4 t/m 7 jaar?                                        | mycosis_medication_ch2a_q_1 | + | |                    | In het luiergebied | 
| - | | fungal infections / did your child receive medical treatment for this from the age of 8 until the present? | + | |                    | In de hals | 
| - | | fungal infections / did your child use any medication for this from the age of 8 until the present? | + | |                    | Rond de ogen of oren | 
| - | | fungal infections / did your child receive medical treatment for this when it was between 8 and 12 years old?                      | schimmelinfecties / is uw kind hiervoor behandeld door een dokter in de leeftijd van 8 t/m 12 jaar?                               | mycosis_treatment_ch3a_q_1 | + | |                    | Op het behaarde deel van het hoofd | 
| - | | fungal infections / did your child use any medication for this when it was between 8 and 12 years old?                             | schimmelinfecties / gebruikte uw kind hiervoor medicijnen in de leeftijd van 8 t/m 12 jaar?                                       | mycosis_medication_ch3a_q_1 | + | |                    | Is deze uitslag ooit helemaal verdwenen? | 
| - | | fungal infections / did your child receive medical treatment for this from the age of 13 until the present? | + | |                    | Hoe vaak was uw kind 's nachts wakker door deze jeukende uitslag? | 
| - | | fungal infections / did your child use any medication for this from the age of 13 until the present? | + | |                    | Heeft uw kind ooit eczeem gehad? | 
| - | | | + | |
| - | |                                                                                                                                    | Hoeveel weken oud was uw kind toen dat voor het eerst gebeurde? | + | |
| - | |                                                                                                                                    | Hoeveel maanden oud was uw kind toen dat voor het eerst gebeurde? | + | |
| - | |                                                                                                                                    | Heeft uw kind deze jeukende uitslag (bijna) constant gehad? | + | |
| - | |                                                                                                                                    | De binnenkant van de ellebogen | + | |
| - | |                                                                                                                                    | De knieholtes | + | |
| - | |                                                                                                                                    | De voorkant van de enkels | + | |
| - | |                                                                                                                                    | In het luiergebied | + | |
| - | |                                                                                                                                    | In de hals                                                                                                                        | | + | |
| - | |                                                                                                                                    | Rond de ogen of oren                                                                                                              | | + | |
| - | |                                                                                                                                    | Op het behaarde deel van het hoofd                                                                                                | | + | |
| - | |                                                                                                                                    | Is deze uitslag ooit helemaal verdwenen? | + | |
| - | |                                                                                                                                    | Hoe vaak was uw kind 's nachts wakker door deze jeukende uitslag? | + | |
| - | |                                                                                                                                    | Heeft uw kind ooit eczeem gehad? | + | |
skin_conditions.1683185425.txt.gz · Last modified:  (external edit)
                
                