skiq
Differences
This shows you the differences between two versions of the page.
| Both sides previous revisionPrevious revisionNext revision | Previous revision | ||
| skiq [2021/01/08 16:05] – [Table] trynke | skiq [2025/02/05 13:49] (current) – external edit 127.0.0.1 | ||
|---|---|---|---|
| Line 1: | Line 1: | ||
| ====== Skin Conditions (SKIQ) ====== | ====== Skin Conditions (SKIQ) ====== | ||
| - | The Skin Conditions questionnaire is an [[additional assessments|additional assessment]] among adult [[cohort|Lifelines]] participants.\\ | + | The Skin Conditions questionnaire is an [[additional assessments|additional assessment]] among adult [[cohort|Lifelines]] participants. The digital questionnaire was developed at the initiative of the UMCG [[https:// |
| - | The digital questionnaire was developed at the initiative of the UMCG [[https:// | + | |
| - | The aim of the questionnaire | + | The collected SKIQ data is currently still under embargo. Please contact the Lifelines data managers at [[data@lifelines.nl]] for more information. |
| + | |||
| + | When the SKIQ data has been used in your research, you will have to include the following references: | ||
| + | * for publication on hand eczema: [[https:// | ||
| + | * for publications on atopic dermatitis/ | ||
| ===== Protocol & response ===== | ===== Protocol & response ===== | ||
| - | The digital questionnaire was sent out between | + | The digital questionnaire was sent out between |
| - | ~136,000 adult Lifelines participants received the questionnaire, | + | ~136,000 adult Lifelines participants received the questionnaire, |
| ===== Variables ===== | ===== Variables ===== | ||
| - | The following | + | The questions |
| - | | **Questions English** | + | * [[Acne]] (8 items) |
| - | | Have you been diagnosed with any of the following skin diseases by a dermatologist (skin doctor) or an allergologist (allergy doctor)? | + | |
| - | | Was the patch test positive for ingredients of hairdye/ | + | |
| - | | What were the results of the patch test? | Wat was de uitslag van de plaktest? | + | * [[Familial diseases |
| - | | Have you ever had an allergy test, by patch testing the skin on your back? | Is er ooit een allergietest door middel van plakproeven uitgevoerd op de huid van uw rug? | HANDECZ20 | + | * [[Medication]] |
| - | | Other; what kind of reaction to the black henna tattoo did you have? | Anders, wat was de reactie op de tijdelijke zwarte henna tatoeage? | + | |
| - | | What kind of reaction to the black henna tattoo did you have? | Wat was de reactie op de tijdelijke zwarte henna tatoeage? | + | |
| - | | Have you ever had a skin reaction after a temporary black henna tattoo? | + | * [[Treatment |
| - | | Other; what kind of reaction to hairdye did you have? | Anders, wat was de reactie op de haarverf? | + | |
| - | | What kind of reaction to hairdye did you have? | Wat was de reactie op de haarverf? | + | |
| - | | Have you ever had a skin reaction after dyeing your hair (or dyeing your eyelashed/ | + | |
| - | | At home: on an average day, how often do you wash your hands? | + | |
| - | | At work: on an average day, how often do you wash your hands? | + | |
| - | | At home: On an average day, how many hours do you wear gloves that are impermeable to fluids? | + | |
| - | | At work: On an average day, how many hours do you wear gloves that are impermeable to fluids? | + | |
| - | | At home: On an average day how many hours do your hands come into direct contact with water, fluids and/or moist products? | + | |
| - | | At work: On an average day how many hours do your hands come into direct contact with water, fluids and/or moist products? (E.g. during washing your hands) | + | |
| - | | During the past 12 months, | + | |
| - | | During the past months, did you have to call in sick for work because of your hand eczema? | + | |
| - | | Did you develop | + | |
| - | | Did you develop | + | |
| - | | Which of the following therapies | + | |
| - | | On average, which group did your hand eczema match over the past 12 months? | + | |
| - | | Which group did your hand eczema match, when your hand eczema was at its worst in the past 12 months? | + | |
| - | | Which group did your hand eczema match, when your hand eczema was at its worst? (lifetime) | + | |
| - | | At which age did you get hand eczema for the first time? | Op welke leeftijd hebt u voor het eerst handeczeem gehad? | + | |
| - | | How often have you had hand eczema in the past 12 months? | + | |
| - | | Have you had hand eczema in the past 12 months? | + | |
| - | | Has a doctor ever diagnosed hand eczema? | + | |
| - | | Have you ever had hand eczema? | + | |
| - | | Would you describe your eczema severity as mild, moderate or severe? | + | |
| - | | Over the last week, on how many days has your skin felt dry or rough because of your eczema? | + | |
| - | | Over the last week, on how many days has your skin been flaking off because of your eczema? | + | |
| - | | Over the last week, on how many days has your skin been cracked because of your eczema? | + | |
| - | | Over the last week, on how many days has your skin been weeping or oozing clear fluid because of your eczema? | + | |
| - | | Over the last week, on how many days has your skin been bleeding because of your eczema? | + | |
| - | | Over the last week, on how many nights has your sleep been disturbed because of your eczema? | + | |
| - | | Over the last week, on how many days has your skin been itchy because of your eczema? | + | |
| - | | Do you currently have eczema, which is present for at least 1 week? | Hebt u op dit moment eczeem, dat minimaal 1 week aanwezig is? | ECZ08 | + | |
| - | | Which of the following therapies (pills, capsules, injections) have you ever had for your atopic dermatitis/ | + | |
| - | | Have you ever been diagnosed with atopic dermatitis or atopic eczema by a doctor? | + | |
| - | | Have you ever had asthma or hay fever? | + | |
| - | | Has the skin disease ever affected the skin creases? (by skin creases we mean folds of elbows, behind the knees, fronts of ankles, under buttocks, around the neck, ears, or eyes) | Kwam de huidaandoening ooit (nu of in het verleden) voor in de huidplooien (bijv. elleboogplooien, | + | |
| - | | At what age did this itchy rash first occur? | + | |
| - | | Have you suffered from a dry skin in general | + | |
| - | | Have you ever had an itchy rash that varied in severity? | + | |
| - | | Did you ever (during your life) get the diagnosis of psoriasis? | + | |
| - | | Did you ever (during your life) get the diagnosis of polycystic ovary syndrome (PCOS)? | + | |
| - | | | Anders, waar hebt u ernstige acne klachten? | + | |
| - | | Where is the acne located? | + | |
| - | | Since which year do you have severe acne symptoms? | + | |
| - | | Do you have severe acne symptoms? | + | |
| - | | | Anders, hoe zou u het verloop van uw huidklachten beschrijven sinds het begin van de huidziekte? | + | |
| - | | How would you describe the activity of your HS symptoms at this moment? | + | |
| - | | | Hoe zou u de activiteit van uw huidklachten op dit moment omschrijven? | + | |
| - | | How would you score the severity of your HS? | Hoe zou u zelf de ernst van uw HS inschatten?< | + | |
| - | | | Anders, op welke locaties hebt u <u>op dit moment</ | + | |
| - | | On which locations/ | + | |
| - | | | Anders, bij welke arts(en) bent u <u>in het verleden</ | + | |
| - | | What kind of doctors have treated you for HS in the past? | Bij welke arts(en) bent u < | + | |
| - | | At what age did you get HS symptoms for the first time? (approximately) | + | |
| - | | Did you have a minimum of 2 outbreaks of boils or nodules within a period of 6 months? | + | |
| - | | Do you repeatedly have outbreaks of big sore or painful nodules or boils that heal with scars in any of these locations: groins, armpits, buttocks or other areas, as shown on the pictures below? | + | |
| - | | | Anders, hoe zou u het verloop van uw huidklachten beschrijven sinds het begin van de huidziekte? | + | |
| - | | How would you describe the course of your HS symptoms since the start of the skin disease? | + | |
| - | | How would you describe the activity of your HS symptoms at this moment? | + | |
| - | | When you look at the pictures below, showing a classification of HS, in which category would you place yourself? | + | |
| - | | Did one of your direct family members (father/ | + | |
| - | | At what age did you get HS symptoms for the first time? (approximately) | + | |
| - | | | Anders, op welke locaties hebt u <u>op dit moment</ | + | |
| - | | On which locations/ | + | |
| - | | | Anders, bij welke arts(en) bent u <u>in het verleden</ | + | |
| - | | What kind of doctors have treated you for HS in the past? | Bij welke arts(en) bent u < | + | |
| - | | | Anders, wat is de reden dat u op dit moment geen behandeling krijgt? | + | |
| - | | What is the reason that you are not receiving treatment at the moment? | + | |
| - | | | Anders, bij wat voor soort arts bent u op dit moment onder behandeling? | + | |
| - | | What kind of doctor is currently treating your HS? | Bij wat voor soort arts bent u <u>op dit moment</ | + | |
| - | | Are you currently receiving treatment for hidradenitis suppurativa? | + | |
| - | | | Anders, wie heeft de < | + | |
| - | | Who diagnosed your HS? | Wie heeft de < | + | |
| - | | Did you ever (during your life) get the diagnosis of hidradenitis suppurativa (HS)? | Hebt u ooit (gedurende het leven) de diagnose < | + | |
| - | Furthermore, some questions were asked about informal care, in addition | + | ===== Publications using SKIQ data ===== |
| - | + | ||
| + | * Zhang, J et al. (2021) [[https:// | ||
| + | * * Zhang J et al. (2021) [[https:// | ||
| + | * Zhang, J et al. (2022) [[https:// | ||
| + | * Voorberg, A.N. et al. (2022) [[https:// | ||
| + | * Loman L. and Schuttelaar M.L.A. (2022) [[https:// | ||
| + | * Brands M.J. et al. (2022) | ||
| + | * Prens L.M. et al. (2022) [[https:// | ||
| + | * Zhang J et al. (2023) [[https:// | ||
| + | * Zhang J et al. (2023) [[https:// | ||
| + | * van der Weijden DAY (2023) [[https:// | ||
| + | * Brands M. J. et al. (2024) [[https:// | ||
skiq.1610121928.txt.gz · Last modified: (external edit)