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 ====== Skin Conditions (SKIQ) ====== ====== Skin Conditions (SKIQ) ======
  
-The Skin Conditions questionnaire is an [[additional assessments|additional assessment]] among adult [[cohort|Lifelines]] participants.\\ +The Skin Conditions questionnaire is an [[additional assessments|additional assessment]] among adult [[cohort|Lifelines]] participants. The digital questionnaire was developed at the initiative of the UMCG [[https://​www.umcg.nl/​NL/​UMCG/​Afdelingen/​dermatologie/​Wetenschappelijk_Onderzoek/​Paginas/​default.aspx|Department of Dermatology]] (NL). With the aim of the questionnaire ​being to gain more insight into [[https://​en.wikipedia.org/​wiki/​Hidradenitis_suppurativa|hidradentitis supperativa]] and [[https://​en.wikipedia.org/​wiki/​Dermatitis|eczema]] in the general population. ​ 
-The digital questionnaire was developed at the initiative of the UMCG [[https://​www.umcg.nl/​NL/​UMCG/​Afdelingen/​dermatologie/​Wetenschappelijk_Onderzoek/​Paginas/​default.aspx|Department of Dermatology]] (NL).\\ + 
-The aim of the questionnaire ​was to gain more insight into [[https://​en.wikipedia.org/​wiki/​Hidradenitis_suppurativa|hidradentitis supperativa]] and [[https://​en.wikipedia.org/​wiki/​Dermatitis|eczema]] in the general population. ​+The collected SKIQ data is currently still under embargo. Please contact the Lifelines data managers at [[data@lifelines.nl]] for more information. 
 + 
 +When the SKIQ data has been used in your research, you will have to include the following references:​ 
 +  * for publication on hand eczema: [[https://​doi.10.2340/​actadv.v101.432|Voorberg,​ A.N. et al. (2022) Prevalence and Severity of Hand Eczema in the Dutch General Population: A Cross-sectional,​ Questionnaire Study within the Lifelines Cohort Study, Acta Derm Venereol 102]]  
 +  * for publications on atopic dermatitis/​eczema:​ [[https://​doi.10.1111/​jdv.17471|Zhang,​ J et al. (2021) Prevalence of adult atopic dermatitis in the general population, with a focus on moderate to severe disease: results from the Lifelines Cohort Study. Eur Acad Dermatol Venereol 35(11):​e787-e790]]
  
 ===== Protocol & response ===== ===== Protocol & response =====
  
-The digital questionnaire was sent out between ​february ​and may 2020.\\ +The digital questionnaire was sent out between ​February ​and May 2020.\\ 
-~136,000 adult Lifelines participants received the questionnaire,​ of which ~58,500 participants (43%) responded+~136,000 adult Lifelines participants received the questionnaire,​ of which ~58,000 participants (43%) responded
  
 ===== Variables ===== ===== Variables =====
    
-The following ​questions ​were asked about skin disorders:+The questions ​included in the skin conditions questionnaire included items from the following subsections: 
 +  * [[Acne]] (8 items) 
 +  * [[Allergies]] (2 items) 
 +  * [[Eczema measure (POEM)]] (8 items) 
 +  * [[Familial diseases (other)]] (1 item) 
 +  * [[Medication]] (15 items) 
 +  * [[Occupational eczema (NOSQ)]] (52 items) 
 +  * [[Skin conditions]] (96 items) 
 +  * [[Treatment (general)]] (28 items) 
 + 
 +===== Publications using SKIQ data =====
  
 +  * Zhang, J et al. (2021) [[https://​onlinelibrary.wiley.com/​doi/​10.1111/​jdv.17471|Prevalence of adult atopic dermatitis in the general population, with a focus on moderate to severe disease: results from the Lifelines Cohort Study]]. Eur Acad Dermatol Venereol 35(11):​e787-e790
 +  *   * Zhang J et al. (2021) [[https://​www.sciencedirect.com/​science/​article/​pii/​S2666328721001061?​via%3Dihub|Impact of the COVID-19 pandemic on adults with moderate-to-severe atopic dermatitis in the Dutch general population]] JAAD Int 6:86-93
 +  * Zhang, J et al. (2022) [[https://​academic.oup.com/​ced/​article/​47/​8/​1523/​6692927?​login=true|Moderate-to-severe atopic dermatitis and lifestyle factors in the Dutch general population]]. Clin Exp Dermatol 47(8): 1523–1535
 +  * Voorberg, A.N. et al. (2022) [[https://​onlinelibrary.wiley.com/​doi/​10.1111/​cod.13804|Prevalence and Severity of Hand Eczema in the Dutch General Population: A Cross-sectional,​ Questionnaire Study within the Lifelines Cohort Study]], Acta Derm Venereol 102.
 +  * Loman L. and Schuttelaar M.L.A. (2022) [[https://​onlinelibrary.wiley.com/​doi/​10.1111/​cod.14005|Hand eczema and lifestyle factors in the Dutch general population: Evidence for smoking, chronic stress, and obesity]]. Contact Dermatitis 86(2):​80-88.
 +  * Brands M.J. et al. (2022) [[https://​onlinelibrary.wiley.com/​doi/​10.1111/​cod.14066|Exposure and work-related factors in subjects with hand eczema: Data from a cross-sectional questionnaire within the Lifelines Cohort Study]]. Contact Dermatitis 86(6):​493-506
 +  * Prens L.M. et al. (2022) [[https://​academic.oup.com/​bjd/​article-lookup/​doi/​10.1111/​bjd.20954|New insights in hidradenitis suppurativa from a population-based Dutch cohort: prevalence, smoking behaviour, socioeconomic status and comorbidities]] Br J Derm 186(5): 814–822
 +  * Zhang J et al. (2023) [[https://​www.sciencedirect.com/​science/​article/​pii/​S2213219823000107?​via%3Dihub|Limited health literacy and its associated health outcomes among adults with at least 2 atopic diseases]] J Allerg Clin Immunol 11(5): 1429-1438
 +  * Zhang J et al. (2023) [[https://​medicaljournalssweden.se/​actadv/​article/​view/​9378|Beyond anxiety and depression: Loneliness and psychiatric disorders in adults with atopic dermatitis]] ActaDV 103, adv9378
 +  * van der Weijden DAY (2023) [[https://​academic.oup.com/​bjd/​advance-article/​doi/​10.1093/​bjd/​ljad317/​7259837?​login=true|Hidradenitis suppurativa tarda: defining an understudied elderly population]] Br J Derm: ljad317
 +  * Brands M. J. et al. (2024) [[https://​doi.org/​10.1111/​cod.14510|Hand eczema-related presenteeism and sickness absence: A cross-sectional population-based study]]. Contact Dermatitis 90(4):​372-377
skiq.1610122161.txt.gz · Last modified: 2025/02/05 14:49 (external edit)