Differences

This shows you the differences between two versions of the page.

--- skiq [2021/07/06 09:53] – trynke
+++ skiq [2025/02/05 13:49] (current) – external edit 127.0.0.1
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 ====== Skin Conditions (SKIQ) ======
-The Skin Conditions questionnaire is an [[additional assessments|additional assessment]] among adult [[cohort|Lifelines]] participants.\\
+The Skin Conditions questionnaire is an [[additional assessments|additional assessment]] among adult [[cohort|Lifelines]] participants. The digital questionnaire was developed at the initiative of the UMCG [[https://www.umcg.nl/NL/UMCG/Afdelingen/dermatologie/Wetenschappelijk_Onderzoek/Paginas/default.aspx|Department of Dermatology]] (NL). With the aim of the questionnaire being to gain more insight into [[https://en.wikipedia.org/wiki/Hidradenitis_suppurativa|hidradentitis supperativa]] and [[https://en.wikipedia.org/wiki/Dermatitis|eczema]] in the general population.
-The digital questionnaire was developed at the initiative of the UMCG [[https://www.umcg.nl/NL/UMCG/Afdelingen/dermatologie/Wetenschappelijk_Onderzoek/Paginas/default.aspx|Department of Dermatology]] (NL).\\
-The aim of the questionnaire was to gain more insight into [[https://en.wikipedia.org/wiki/Hidradenitis_suppurativa|hidradentitis supperativa]] and [[https://en.wikipedia.org/wiki/Dermatitis|eczema]] in the general population.
-===== Protocol & response =====
+The collected SKIQ data is currently still under embargo. Please contact the Lifelines data managers at [[data@lifelines.nl]] for more information.
-The digital questionnaire was sent out between february and may 2020.\\
+When the SKIQ data has been used in your research, you will have to include the following references:
-~136,000 adult Lifelines participants received the questionnaire, of which ~58,500 participants (43%) responded
+  * for publication on hand eczema: [[https://doi.10.2340/actadv.v101.432|Voorberg, A.N. et al. (2022) Prevalence and Severity of Hand Eczema in the Dutch General Population: A Cross-sectional, Questionnaire Study within the Lifelines Cohort Study, Acta Derm Venereol 102]]
+  * for publications on atopic dermatitis/eczema: [[https://doi.10.1111/jdv.17471|Zhang, J et al. (2021) Prevalence of adult atopic dermatitis in the general population, with a focus on moderate to severe disease: results from the Lifelines Cohort Study. Eur Acad Dermatol Venereol 35(11):e787-e790]]
-===== Publications using SKIQ data =====
+===== Protocol & response =====
+The digital questionnaire was sent out between February and May 2020.\\
+~136,000 adult Lifelines participants received the questionnaire, of which ~58,000 participants (43%) responded.
-  * Zhang, J et al. (2021) Prevalence of adult atopic dermatitis in the general population, with a focus on moderate to severe disease: results from the Lifelines Cohort Study. Eur Acad Dermatol Venereol (in press)
 ===== Variables =====
-The following questions were asked about skin disorders:
+The questions included in the skin conditions questionnaire included items from the following subsections:
+  * [[Acne]] (8 items)
+  * [[Allergies]] (2 items)
+  * [[Eczema measure (POEM)]] (8 items)
+  * [[Familial diseases (other)]] (1 item)
+  * [[Medication]] (15 items)
+  * [[Occupational eczema (NOSQ)]] (52 items)
+  * [[Skin conditions]] (96 items)
+  * [[Treatment (general)]] (28 items)
+===== Publications using SKIQ data =====
+  * Zhang, J et al. (2021) [[https://onlinelibrary.wiley.com/doi/10.1111/jdv.17471|Prevalence of adult atopic dermatitis in the general population, with a focus on moderate to severe disease: results from the Lifelines Cohort Study]]. Eur Acad Dermatol Venereol 35(11):e787-e790
+  *   * Zhang J et al. (2021) [[https://www.sciencedirect.com/science/article/pii/S2666328721001061?via%3Dihub|Impact of the COVID-19 pandemic on adults with moderate-to-severe atopic dermatitis in the Dutch general population]] JAAD Int 6:86-93
+  * Zhang, J et al. (2022) [[https://academic.oup.com/ced/article/47/8/1523/6692927?login=true|Moderate-to-severe atopic dermatitis and lifestyle factors in the Dutch general population]]. Clin Exp Dermatol 47(8): 1523–1535
+  * Voorberg, A.N. et al. (2022) [[https://onlinelibrary.wiley.com/doi/10.1111/cod.13804|Prevalence and Severity of Hand Eczema in the Dutch General Population: A Cross-sectional, Questionnaire Study within the Lifelines Cohort Study]], Acta Derm Venereol 102.
+  * Loman L. and Schuttelaar M.L.A. (2022) [[https://onlinelibrary.wiley.com/doi/10.1111/cod.14005|Hand eczema and lifestyle factors in the Dutch general population: Evidence for smoking, chronic stress, and obesity]]. Contact Dermatitis 86(2):80-88.
+  * Brands M.J. et al. (2022) [[https://onlinelibrary.wiley.com/doi/10.1111/cod.14066|Exposure and work-related factors in subjects with hand eczema: Data from a cross-sectional questionnaire within the Lifelines Cohort Study]]. Contact Dermatitis 86(6):493-506
+  * Prens L.M. et al. (2022) [[https://academic.oup.com/bjd/article-lookup/doi/10.1111/bjd.20954|New insights in hidradenitis suppurativa from a population-based Dutch cohort: prevalence, smoking behaviour, socioeconomic status and comorbidities]] Br J Derm 186(5): 814–822
+  * Zhang J et al. (2023) [[https://www.sciencedirect.com/science/article/pii/S2213219823000107?via%3Dihub|Limited health literacy and its associated health outcomes among adults with at least 2 atopic diseases]] J Allerg Clin Immunol 11(5): 1429-1438
+  * Zhang J et al. (2023) [[https://medicaljournalssweden.se/actadv/article/view/9378|Beyond anxiety and depression: Loneliness and psychiatric disorders in adults with atopic dermatitis]] ActaDV 103, adv9378
+  * van der Weijden DAY (2023) [[https://academic.oup.com/bjd/advance-article/doi/10.1093/bjd/ljad317/7259837?login=true|Hidradenitis suppurativa tarda: defining an understudied elderly population]] Br J Derm: ljad317
+  * Brands M. J. et al. (2024) [[https://doi.org/10.1111/cod.14510|Hand eczema-related presenteeism and sickness absence: A cross-sectional population-based study]]. Contact Dermatitis 90(4):372-377