general_health_promis
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| general_health_promis [2019/10/16 10:11] – trynke | general_health_promis [2025/02/05 13:49] (current) – external edit 127.0.0.1 | ||
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| - sleep disturbance | - sleep disturbance | ||
| - satisfaction with participation in social roles | - satisfaction with participation in social roles | ||
| - | The PROMIS-29 for adults was used in [[start|Lifelines]] general assessment [[2B]] and in additional assessment [[QACT]].\\ | + | The PROMIS-29 for adults was used in [[start|Lifelines]] general assessment [[2B]] and in additional assessment [[ACTQ]].\\ |
| - | Underage participants received the 10-item PROMIS short form on fatigue | + | [[children|Underage]] participants received the 10/8-item PROMIS short forms on [[Fatigue (PROMIS <18)|fatigue]] and [[Social functioning (PROMIS < |
| ===== Background ===== | ===== Background ===== | ||
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| - CAT software and a web-based infrastructure to set up studies using CATs are not yet available. The [[https:// | - CAT software and a web-based infrastructure to set up studies using CATs are not yet available. The [[https:// | ||
| - Reference scores from the Dutch general population are not yet available. These are needed because all PROMIS scores are expressed as T-scores, in which scores have a mean of 50 and a standard deviation of 10 compared with the general population. | - Reference scores from the Dutch general population are not yet available. These are needed because all PROMIS scores are expressed as T-scores, in which scores have a mean of 50 and a standard deviation of 10 compared with the general population. | ||
| - | Dutch reference scores are to be preferred over US reference scores. The implementation of the PROMIS-29 Profile in Lifelines would help to estimate Dutch reference scores for seven PROMIS item banks (if necessary, using CBS census data for weighting), which will facilitate the implementation of CATs for these banks15. | + | Dutch reference scores are to be preferred over US reference scores. The implementation of the PROMIS-29 Profile in Lifelines would help to estimate Dutch reference scores for seven PROMIS item banks (if necessary, using CBS census data for weighting), which will facilitate the implementation of CATs for these banks. |
| ===== Validation ===== | ===== Validation ===== | ||
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| **Reliability** of PROMIS instruments was assessed in the general US population by calculating each item bank’s standard error and reliability coefficients, | **Reliability** of PROMIS instruments was assessed in the general US population by calculating each item bank’s standard error and reliability coefficients, | ||
| Several studies have shown that the **measurement error** of PROMIS instruments is smaller than the measurement error of questionnaires measuring comparable constructs (for example PROMIS versus SF-36). These studies were performed in patients with arthritis, depression and patients in a rehabilitation setting. | Several studies have shown that the **measurement error** of PROMIS instruments is smaller than the measurement error of questionnaires measuring comparable constructs (for example PROMIS versus SF-36). These studies were performed in patients with arthritis, depression and patients in a rehabilitation setting. | ||
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| + | In 2022, the measurement properties of the Dutch PROMIS-29 v2.1 profile was assessed in Lifelines participants with and without chronic conditions((Elsman E.B. et al. (2022) Measurement properties of the Dutch PROMIS-29 v2.1 profile in people with and without chronic conditions; Quality of Life Research 176[1])) | ||
| ===== Variables ===== | ===== Variables ===== | ||
| - | | **Questions English** | + | | **Questions English** |
| - | | Are you able to do chores | + | | can you do chores |
| - | | Are you able to go up and down stairs at a normal pace? | + | | can you go up and down stairs at a normal pace? / physical functioning |
| - | | Are you able to go for a walk of at least 15 minutes? | + | | are you able to walk for at least 15 minutes? |
| - | | Are you able to run errands and shop? | + | | are you able to run errands and go shopping? / physical functioning |
| - | | In the past 7 days I felt fearful | + | | i felt anxious / anxiety (please answer for the past 7 days) | ik voelde me angstig / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | In the past 7 days I found it hard to focus on anything | + | | i found it difficult |
| - | | In the past 7 days my worries overwhelmed me | + | | my worries were more than i could take / anxiety (please answer for the past 7 days) | mijn zorgen waren me te veel / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | In the past 7 days I felt uneasy | + | | i felt ill at ease / anxiety (please answer for the past 7 days) | ik voelde me slecht op mijn gemak / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | In the past 7 days I felt worthless | + | | i felt worthless / depression (please answer for the past 7 days) |
| - | | In the past 7 days I felt helpless | + | | i felt helpless / depression (please answer for the past 7 days) | ik voelde me hulpeloos / depressie |
| - | | In the past 7 days I felt depressed | + | | i felt depressed / depression (please answer for the past 7 days) |
| - | | In the past 7 days I felt hopeless | + | | i felt hopeless / depression (please answer for the past 7 days) | ik voelde me zonder hoop / depressie |
| - | | During | + | | i suffer from fatigue / fatigue (please answer for the past 7 days) |
| - | | In the past 7 days how fatigued | + | | how tired were you, on average? |
| - | | During the past 7 days I have trouble | + | | i have difficulty getting |
| - | | In the past 7 days how run-down | + | | how 'worn out' |
| - | | In the past 7 days my sleep quality | + | | the quality of my sleep was / sleep disorders (please answer for the past 7 days) |
| - | | In the past 7 days my sleep was refreshing | + | | my sleep was refreshing |
| - | | In the past 7 days I had a problem with my sleep | + | | i had a sleeping disorder / sleep disorders (please answer for the past 7 days) |
| - | | In the past 7 days I had difficulty falling asleep | + | | i had difficulty falling asleep / sleep disorders (please answer for the past 7 days) |
| - | | I have trouble doing all of my regular | + | | i have difficulty engaging in all my normal |
| - | | I have trouble | + | | i have difficulty |
| - | | I have trouble | + | | i have difficulty |
| - | | I have trouble | + | | i have difficulty |
| - | | In the past 7 days how much did pain interfere with your day to day activities? | + | | to what extent |
| - | | In the past 7 days how much did pain interfere with work around the home? | + | | to what extent |
| - | | In the past 7 days how much did pain interfere with your ability to participate in social activities? | + | | to what extent |
| - | | In the past 7 days how much did pain interfere with your household chores? | + | | to what extent |
| - | | In the past 7 days how would you rate your pain on average? | + | | how would you rate the pain you feel, on average? |
| - | | In the past 7 days being tired made it hard for me to play or go out with my friends as much as I'd like | Door mijn moeheid was het moeilijk om zo veel als ik zou willen te spelen of weg te gaan met mijn vrienden of vriendinnen./ | + | |
| - | | In the past 7 days I felt weak | Ik voelde me zwak./ de afgelopen 7 dagen | ACHPROMISF2 | + | |
| - | | In the past 7 days I got tired easily | + | |
| - | | In the past 7 days being tired made it hard for me to keep up with my schoolwork | + | |
| - | | In the past 7 days I had trouble finishing things because I was too tired | Ik had moeite om dingen af te maken omdat ik te moe was./ de afgelopen 7 dagen | ACHPROMISF5 | + | |
| - | | In the past 7 days I had trouble starting things because I was too tired | Ik had moeite om met dingen te beginnen omdat ik te moe was./ de afgelopen 7 dagen | ACHPROMISF6 | + | |
| - | | In the past 7 days I was so tired it was hard for me to pay attention | + | |
| - | | In the past 7 days I was too tired to do sports or exercise | + | |
| - | | In the past 7 days I was too tired to do things outside | + | |
| - | | In the past 7 days I was too tired to enjoy the things I like to do | Ik was te moe om te genieten van de dingen die ik leuk vind om te doen./ de afgelopen 7 dagen | ACHPROMISF10 | + | |
| - | | In the past 7 days being tired made it hard for my child to play or go out with friends as much as he/she would like | Door moeheid was het moeilijk voor mijn kind om zo veel als hij/zij zou willen te spelen of weg te gaan met vrienden of vriendinnen (de afgelopen 7 dagen). | + | |
| - | | In the past 7 days my child felt weak | Mijn kind voelde zich zwak (de afgelopen 7 dagen). | + | |
| - | | In the past 7 days my child got tired easily | + | |
| - | | In the past 7 days being tired made it hard for my child to keep up with schoolwork | + | |
| - | | In the past 7 days my child had trouble finishing things because he/she was too tired | Mijn kind had moeite om dingen af te maken omdat hij/zij te moe was (de afgelopen 7 dagen). | + | |
| - | | In the past 7 days my child had trouble starting things because he/she was too tired | Mijn kind had moeite om met dingen te beginnen omdat hij/zij te moe was (de afgelopen 7 dagen). | + | |
| - | | In the past 7 days my child was so tired it was hard for him/her to pay attention | + | |
| - | | In the past 7 days my child was too tired to do sports or exercise | + | |
| - | | In the past 7 days my child was too tired to do things outside | + | |
| - | | In the past 7 days my child was too tired to enjoy the things he/she likes to do | Mijn kind was te moe om te genieten van de dingen die hij/zij leuk vindt om te doen (de afgelopen 7 dagen). | + | |
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