general_health_promis
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| general_health_promis [2020/09/21 11:09] – [Table] trynke | general_health_promis [2025/02/05 13:49] (current) – external edit 127.0.0.1 | ||
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| - satisfaction with participation in social roles | - satisfaction with participation in social roles | ||
| The PROMIS-29 for adults was used in [[start|Lifelines]] general assessment [[2B]] and in additional assessment [[ACTQ]].\\ | The PROMIS-29 for adults was used in [[start|Lifelines]] general assessment [[2B]] and in additional assessment [[ACTQ]].\\ | ||
| - | [[children|Underage]] participants received the 10-item PROMIS short forms on fatigue and social roles in assessment | + | [[children|Underage]] participants received the 10/8-item PROMIS short forms on [[Fatigue (PROMIS <18)|fatigue]] and [[Social functioning (PROMIS < |
| ===== Background ===== | ===== Background ===== | ||
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| - CAT software and a web-based infrastructure to set up studies using CATs are not yet available. The [[https:// | - CAT software and a web-based infrastructure to set up studies using CATs are not yet available. The [[https:// | ||
| - Reference scores from the Dutch general population are not yet available. These are needed because all PROMIS scores are expressed as T-scores, in which scores have a mean of 50 and a standard deviation of 10 compared with the general population. | - Reference scores from the Dutch general population are not yet available. These are needed because all PROMIS scores are expressed as T-scores, in which scores have a mean of 50 and a standard deviation of 10 compared with the general population. | ||
| - | Dutch reference scores are to be preferred over US reference scores. The implementation of the PROMIS-29 Profile in Lifelines would help to estimate Dutch reference scores for seven PROMIS item banks (if necessary, using CBS census data for weighting), which will facilitate the implementation of CATs for these banks15. | + | Dutch reference scores are to be preferred over US reference scores. The implementation of the PROMIS-29 Profile in Lifelines would help to estimate Dutch reference scores for seven PROMIS item banks (if necessary, using CBS census data for weighting), which will facilitate the implementation of CATs for these banks. |
| ===== Validation ===== | ===== Validation ===== | ||
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| **Reliability** of PROMIS instruments was assessed in the general US population by calculating each item bank’s standard error and reliability coefficients, | **Reliability** of PROMIS instruments was assessed in the general US population by calculating each item bank’s standard error and reliability coefficients, | ||
| Several studies have shown that the **measurement error** of PROMIS instruments is smaller than the measurement error of questionnaires measuring comparable constructs (for example PROMIS versus SF-36). These studies were performed in patients with arthritis, depression and patients in a rehabilitation setting. | Several studies have shown that the **measurement error** of PROMIS instruments is smaller than the measurement error of questionnaires measuring comparable constructs (for example PROMIS versus SF-36). These studies were performed in patients with arthritis, depression and patients in a rehabilitation setting. | ||
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| + | In 2022, the measurement properties of the Dutch PROMIS-29 v2.1 profile was assessed in Lifelines participants with and without chronic conditions((Elsman E.B. et al. (2022) Measurement properties of the Dutch PROMIS-29 v2.1 profile in people with and without chronic conditions; Quality of Life Research 176[1])) | ||
| ===== Variables ===== | ===== Variables ===== | ||
| - | | **Questions English** | + | | **Questions English** |
| - | | Are you able to do chores | + | | can you do chores |
| - | | Are you able to go up and down stairs at a normal pace? | Kunt u in een normaal tempo trappen op- en afgaan? / Lichamelijk | + | | can you go up and down stairs at a normal pace? / physical functioning |
| - | | Are you able to go for a walk of at least 15 minutes? | + | | are you able to walk for at least 15 minutes? |
| - | | Are you able to run errands and shop? | Kunt u boodschappen doen en winkelen? / Lichamelijk | + | | are you able to run errands and go shopping? / physical functioning |
| - | | In the past 7 days I felt fearful | + | | i felt anxious / anxiety (please answer for the past 7 days) | ik voelde me angstig / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | In the past 7 days I found it hard to focus on anything | + | | i found it difficult |
| - | | In the past 7 days my worries overwhelmed me | Mijn zorgen waren me te veel. / Angst (geef a.u.b. | + | | my worries were more than i could take / anxiety (please answer for the past 7 days) | mijn zorgen waren me te veel / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | In the past 7 days I felt uneasy | + | | i felt ill at ease / anxiety (please answer for the past 7 days) | ik voelde me slecht op mijn gemak / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | In the past 7 days I felt worthless | + | | i felt worthless / depression (please answer for the past 7 days) |
| - | | In the past 7 days I felt helpless | + | | i felt helpless / depression (please answer for the past 7 days) | ik voelde me hulpeloos / depressie |
| - | | In the past 7 days I felt depressed | + | | i felt depressed / depression (please answer for the past 7 days) |
| - | | In the past 7 days I felt hopeless | + | | i felt hopeless / depression (please answer for the past 7 days) | ik voelde me zonder hoop / depressie |
| - | | During | + | | i suffer from fatigue / fatigue (please answer for the past 7 days) |
| - | | In the past 7 days how fatigued | + | | how tired were you, on average? |
| - | | During the past 7 days I have trouble | + | | i have difficulty getting |
| - | | In the past 7 days how run-down | + | | how 'worn out' |
| - | | In the past 7 days my sleep quality | + | | the quality of my sleep was / sleep disorders (please answer for the past 7 days) |
| - | | In the past 7 days my sleep was refreshing | + | | my sleep was refreshing |
| - | | In the past 7 days I had a problem with my sleep | Ik had een slaapprobleem. / Slaapstoornissen | + | | i had a sleeping disorder / sleep disorders (please answer for the past 7 days) |
| - | | In the past 7 days I had difficulty falling asleep | + | | i had difficulty falling asleep / sleep disorders (please answer for the past 7 days) |
| - | | I have trouble doing all of my regular | + | | i have difficulty engaging in all my normal |
| - | | I have trouble | + | | i have difficulty |
| - | | I have trouble | + | | i have difficulty |
| - | | I have trouble | + | | i have difficulty |
| - | | In the past 7 days how much did pain interfere with your day to day activities? | + | | to what extent |
| - | | In the past 7 days how much did pain interfere with work around the home? | In welke mate belemmerde pijn u bij werk in en om het huis? / Belemmeringen | + | | to what extent |
| - | | In the past 7 days how much did pain interfere with your ability to participate in social activities? | + | | to what extent |
| - | | In the past 7 days how much did pain interfere with your household chores? | + | | to what extent |
| - | | In the past 7 days how would you rate your pain on average? | + | | how would you rate the pain you feel, on average? |
| - | | my tiredness made it difficult to play or to get away with my friends as much as i would have liked (the past 7 days) | door mijn moeheid was het moeilijk om zo veel als ik zou willen te spelen of weg te gaan met mijn vrienden of vriendinnen (de afgelopen 7 dagen) | + | |
| - | | i felt weak (the past 7 days) | ik voelde me zwak (de afgelopen 7 dagen) | + | |
| - | | i tired easily (the past 7 days) | ik werd gauw moe (de afgelopen 7 dagen) | + | |
| - | | i found it hard to keep up with schoolwork because i was tired (the past 7 days) | ik kon moeilijk bijblijven met mijn werk voor school omdat ik moe was (de afgelopen 7 dagen) | + | |
| - | | i had difficulty finishing things because i was too tired (the past 7 days) | ik had moeite om dingen af te maken omdat ik te moe was (de afgelopen 7 dagen) | + | |
| - | | i had difficulty starting things because i was too tired (the past 7 days) | ik had moeite om met dingen te beginnen omdat ik te moe was (de afgelopen 7 dagen) | + | |
| - | | i was so tired that i found it difficult to pay attention (the past 7 days) | ik was zo moe dat ik moeite had om op te letten (de afgelopen 7 dagen) | + | |
| - | | i was too tired to engage in sports or exercise (the past 7 days) | ik was te moe om te sporten of te bewegen (de afgelopen 7 dagen) | + | |
| - | | i was too tired to engage in outdoor activities (the past 7 days) | ik was te moe om buiten dingen te doen (de afgelopen 7 dagen) | + | |
| - | | i was too tired to enjoy the things i like to do (the past 7 days) | ik was te moe om te genieten van de dingen die ik leuk vind om te doen (de afgelopen 7 dagen) | + | |
| - | | their tiredness made it difficult for my child to play or to get away with their friends as much as they would have liked (the past 7 days) | door moeheid was het moeilijk voor mijn kind om zo veel als hij/zij zou willen te spelen of weg te gaan met vrienden of vriendinnen (de afgelopen 7 dagen) | + | |
| - | | my child felt weak (the past 7 days) | mijn kind voelde zich zwak (de afgelopen 7 dagen) | + | |
| - | | my child tired easily (the past 7 days) | mijn kind werd gauw moe (de afgelopen 7 dagen) | + | |
| - | | my child found it hard to keep up with schoolwork because they were tired (the past 7 days) | mijn kind kon moeilijk bijblijven met werk voor school omdat hij/zij moe was (de afgelopen 7 dagen) | + | |
| - | | my child had difficulty finishing things because they were too tired (the past 7 days) | mijn kind had moeite om dingen af te maken omdat hij/zij te moe was (de afgelopen 7 dagen) | + | |
| - | | my child had difficulty starting on things because they were too tired (the past 7 days) | mijn kind had moeite om met dingen te beginnen omdat hij/zij te moe was (de afgelopen 7 dagen) | + | |
| - | | my child was so tired that they had trouble paying attention (the past 7 days) | mijn kind was zo moe dat hij/zij moeite had om op te letten (de afgelopen 7 dagen) | + | |
| - | | my child was too tired to engage in sports or exercise (the past 7 days) | mijn kind was te moe om te sporten of te bewegen (de afgelopen 7 dagen) | + | |
| - | | my child was too tired to engage in outdoor activities (the past 7 days) | mijn kind was te moe om buiten dingen te doen (de afgelopen 7 dagen) | + | |
| - | | my child was too tired to enjoy the things they liked doing (the past 7 days) | mijn kind was te moe om te genieten van de dingen die hij/zij leuk vindt om te doen (de afgelopen 7 dagen) | + | |
| - | | In the past 7 days I felt accepted by other kids my age | Ik voelde me geaccepteerd door andere kinderen van mijn leeftijd./ de afgelopen 7 dagen | | ACHPROMISPR1 | + | |
| - | | In the past 7 days I was able to count on my friends | + | |
| - | | In the past 7 days I was good at making friends | + | |
| - | | In the past 7 days my friends and I helped each other out | Mijn vrienden en vriendinnen en ik hielpen elkaar./ de afgelopen 7 dagen | + | |
| - | | In the past 7 days other kids wanted to be my friend | + | |
| - | | In the past 7 days other kids wanted to be with me | Andere kinderen wilden bij me zijn./ de afgelopen 7 dagen | | ACHPROMISPR6 | + | |
| - | | In the past 7 days other kids wanted to talk to me | Andere kinderen wilden met me praten./ de afgelopen 7 dagen | | ACHPROMISPR7 | + | |
| - | | In the past 7 days I was able to talk about everything with my friends | + | |
| - | | In the past 7 days my child felt accepted by other kids his/her age | Mijn kind voelde zich geaccepteerd door andere kinderen van zijn/haar leeftijd (de afgelopen 7 dagen). | + | |
| - | | In the past 7 days my child was able to count on his/her friends | + | |
| - | | In the past 7 days my child was good at making friends | + | |
| - | | In the past 7 days my child and his/her friends helped each other out | Mijn kind en zijn/haar vrienden en vriendinnen hielpen elkaar (de afgelopen 7 dagen). | + | |
| - | | In the past 7 days other kids wanted to be my child' | + | |
| - | | In the past 7 days other kids wanted to be with my child | Andere kinderen wilden bij mijn kind zijn (de afgelopen 7 dagen). | + | |
| - | | In the past 7 days other kids wanted to talk to my child | Andere kinderen wilden met mijn kind praten (de afgelopen 7 dagen). | + | |
| - | | In the past 7 days my child was able to have fun with his/her friends | + | |
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