general_health_promis
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| general_health_promis [2022/07/11 12:33] – trynke | general_health_promis [2025/02/05 13:49] (current) – external edit 127.0.0.1 | ||
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| - satisfaction with participation in social roles | - satisfaction with participation in social roles | ||
| The PROMIS-29 for adults was used in [[start|Lifelines]] general assessment [[2B]] and in additional assessment [[ACTQ]].\\ | The PROMIS-29 for adults was used in [[start|Lifelines]] general assessment [[2B]] and in additional assessment [[ACTQ]].\\ | ||
| - | [[children|Underage]] participants received the 10/8-item PROMIS short forms on fatigue and social roles in assessment | + | [[children|Underage]] participants received the 10/8-item PROMIS short forms on [[Fatigue (PROMIS <18)|fatigue]] and [[Social functioning (PROMIS < |
| ===== Background ===== | ===== Background ===== | ||
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| Several studies have shown that the **measurement error** of PROMIS instruments is smaller than the measurement error of questionnaires measuring comparable constructs (for example PROMIS versus SF-36). These studies were performed in patients with arthritis, depression and patients in a rehabilitation setting. | Several studies have shown that the **measurement error** of PROMIS instruments is smaller than the measurement error of questionnaires measuring comparable constructs (for example PROMIS versus SF-36). These studies were performed in patients with arthritis, depression and patients in a rehabilitation setting. | ||
| - | In 2022, the measurement properties of the Dutch PROMIS-29 v2.1 profile was assessed in Lifelines participants with and without chronic conditions((Elsman E.B. et al. (2022) Measurement properties of the Dutch PROMIS-29 v2.1 profile in people with and without chronic conditions; Quality of Life Research 176(1))) | + | In 2022, the measurement properties of the Dutch PROMIS-29 v2.1 profile was assessed in Lifelines participants with and without chronic conditions((Elsman E.B. et al. (2022) Measurement properties of the Dutch PROMIS-29 v2.1 profile in people with and without chronic conditions; Quality of Life Research 176[1])) |
| ===== Variables ===== | ===== Variables ===== | ||
| - | | **Questions English** | + | | **Questions English** |
| - | | can you do chores like vacuuming or gardening? / physical functioning | + | | can you do chores like vacuuming or gardening? / physical functioning |
| - | | can you go up and down stairs at a normal pace? / physical functioning | + | | can you go up and down stairs at a normal pace? / physical functioning |
| - | | are you able to walk for at least 15 minutes? / physical functioning | + | | are you able to walk for at least 15 minutes? / physical functioning |
| - | | are you able to run errands and go shopping? / physical functioning | + | | are you able to run errands and go shopping? / physical functioning |
| - | | i felt anxious / anxiety (please answer for the past 7 days) | ik voelde me angstig / angst (geef aub antwoord voor de afgelopen 7 dagen) | + | | i felt anxious / anxiety (please answer for the past 7 days) | ik voelde me angstig / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | i found it difficult to focus on something other than my anxiety and concern / anxiety (please answer for the past 7 days) | ik vond het moeilijk om me op iets anders dan mijn angst en bezorgdheid te concentreren / angst (geef aub antwoord voor de afgelopen 7 dagen) | + | | i found it difficult to focus on something other than my anxiety and concern / anxiety (please answer for the past 7 days) | ik vond het moeilijk om me op iets anders dan mijn angst en bezorgdheid te concentreren / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | my worries were more than i could take / anxiety (please answer for the past 7 days) | mijn zorgen waren me te veel / angst (geef aub antwoord voor de afgelopen 7 dagen) | + | | my worries were more than i could take / anxiety (please answer for the past 7 days) | mijn zorgen waren me te veel / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | i felt ill at ease / anxiety (please answer for the past 7 days) | ik voelde me slecht op mijn gemak / angst (geef aub antwoord voor de afgelopen 7 dagen) | + | | i felt ill at ease / anxiety (please answer for the past 7 days) | ik voelde me slecht op mijn gemak / angst (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | i felt worthless / depression (please answer for the past 7 days) | ik voelde me alsof ik niets waard was / depressie (geef aub antwoord voor de afgelopen 7 dagen) | + | | i felt worthless / depression (please answer for the past 7 days) | ik voelde me alsof ik niets waard was / depressie (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | i felt helpless / depression (please answer for the past 7 days) | ik voelde me hulpeloos / depressie (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | i felt helpless / depression (please answer for the past 7 days) | ik voelde me hulpeloos / depressie (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | i felt depressed / depression (please answer for the past 7 days) | ik voelde me depressief / depressie (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | i felt depressed / depression (please answer for the past 7 days) | ik voelde me depressief / depressie (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | i felt hopeless / depression (please answer for the past 7 days) | ik voelde me zonder hoop / depressie (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | i felt hopeless / depression (please answer for the past 7 days) | ik voelde me zonder hoop / depressie (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | i suffer from fatigue / fatigue (please answer for the past 7 days) | ik heb last van vermoeidheid / vermoeidheid (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | i suffer from fatigue / fatigue (please answer for the past 7 days) | ik heb last van vermoeidheid / vermoeidheid (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | how tired were you, on average? / fatigue (please answer for the past 7 days) | hoe vermoeid was u gemiddeld genomen? / vermoeidheid (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | how tired were you, on average? / fatigue (please answer for the past 7 days) | hoe vermoeid was u gemiddeld genomen? / vermoeidheid (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | i have difficulty getting starting with things because i am so tired / fatigue (please answer for the past 7 days) | het kost me moeite om met dingen te beginnen omdat ik zo moe ben / vermoeidheid (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | i have difficulty getting starting with things because i am so tired / fatigue (please answer for the past 7 days) | het kost me moeite om met dingen te beginnen omdat ik zo moe ben / vermoeidheid (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | how 'worn out' did you feel on average? / fatigue (please answer for the past 7 days) | hoe afgepeigerd voelde u zich gemiddeld genomen? / vermoeidheid (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | how 'worn out' did you feel on average? / fatigue (please answer for the past 7 days) | hoe afgepeigerd voelde u zich gemiddeld genomen? / vermoeidheid (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | the quality of my sleep was / sleep disorders (please answer for the past 7 days) | de kwaliteit van mijn slaap was… / slaapstoornissen (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | the quality of my sleep was / sleep disorders (please answer for the past 7 days) | de kwaliteit van mijn slaap was… / slaapstoornissen (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | my sleep was refreshing / sleep disorders (please answer for the past 7 days) | mijn slaap was verkwikkend / slaapstoornissen (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | my sleep was refreshing / sleep disorders (please answer for the past 7 days) | mijn slaap was verkwikkend / slaapstoornissen (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | i had a sleeping disorder / sleep disorders (please answer for the past 7 days) | ik had een slaapprobleem / slaapstoornissen (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | i had a sleeping disorder / sleep disorders (please answer for the past 7 days) | ik had een slaapprobleem / slaapstoornissen (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | i had difficulty falling asleep / sleep disorders (please answer for the past 7 days) | ik had moeite met in slaap vallen / slaapstoornissen (geef a.u.b. antwoord voor de afgelopen 7 dagen) | + | | i had difficulty falling asleep / sleep disorders (please answer for the past 7 days) | ik had moeite met in slaap vallen / slaapstoornissen (geef a.u.b. antwoord voor de afgelopen 7 dagen) |
| - | | i have difficulty engaging in all my normal leisure pursuits with others / ability to participate in social roles and activities | + | | i have difficulty engaging in all my normal leisure pursuits with others / ability to participate in social roles and activities |
| - | | i have difficulty doing all the family activities that i want to / ability to participate in social roles and activities | + | | i have difficulty doing all the family activities that i want to / ability to participate in social roles and activities |
| - | | i have difficulty doing all my normal work (including work at home) / ability to participate in social roles and activities | + | | i have difficulty doing all my normal work (including work at home) / ability to participate in social roles and activities |
| - | | i have difficulty doing all the activities with friends that i want to / ability to participate in social roles and activities | + | | i have difficulty doing all the activities with friends that i want to / ability to participate in social roles and activities |
| - | | to what extent did pain hamper you in your daily activities? / limitations due to pain (please answer for the past 7 days) | in welke mate belemmerde pijn u bij uw dagelijkse activiteiten? | + | | to what extent did pain hamper you in your daily activities? / limitations due to pain (please answer for the past 7 days) | in welke mate belemmerde pijn u bij uw dagelijkse activiteiten? |
| - | | to what extent did pain hamper you in your work in and around the house? / limitations due to pain (please answer for the past 7 days) | in welke mate belemmerde pijn u bij werk in en om het huis? / belemmeringen door pijn (geef aub antwoord voor de afgelopen 7 dagen) | + | | to what extent did pain hamper you in your work in and around the house? / limitations due to pain (please answer for the past 7 days) | in welke mate belemmerde pijn u bij werk in en om het huis? / belemmeringen door pijn (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | to what extent did pain hamper you in your ability to participate in social activities? / limitations due to pain (please answer for the past 7 days) | in welke mate belemmerde pijn uw vermogen om deel te nemen aan sociale activiteiten? | + | | to what extent did pain hamper you in your ability to participate in social activities? / limitations due to pain (please answer for the past 7 days) | in welke mate belemmerde pijn uw vermogen om deel te nemen aan sociale activiteiten? |
| - | | to what extent did pain hamper you in your household chores? / limitations due to pain (please answer for the past 7 days) | in welke mate belemmerde pijn u bij uw huishoudelijke klusjes? / belemmeringen door pijn (geef aub antwoord voor de afgelopen 7 dagen) | + | | to what extent did pain hamper you in your household chores? / limitations due to pain (please answer for the past 7 days) | in welke mate belemmerde pijn u bij uw huishoudelijke klusjes? / belemmeringen door pijn (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | how would you rate the pain you feel, on average? / pain intensity (please provide answer for the past 7 days) | hoe zou u gemiddeld uw pijn beoordelen? / pijnintensiteit (geef aub antwoord voor de afgelopen 7 dagen) | + | | how would you rate the pain you feel, on average? / pain intensity (please provide answer for the past 7 days) | hoe zou u gemiddeld uw pijn beoordelen? / pijnintensiteit (geef aub antwoord voor de afgelopen 7 dagen) |
| - | | my tiredness made it difficult to play or to get away with my friends as much as i would have liked (the past 7 days) | door mijn moeheid was het moeilijk om zo veel als ik zou willen te spelen of weg te gaan met mijn vrienden of vriendinnen (de afgelopen 7 dagen) | + | |
| - | | i felt weak (the past 7 days) | ik voelde me zwak (de afgelopen 7 dagen) | + | |
| - | | i tired easily (the past 7 days) | ik werd gauw moe (de afgelopen 7 dagen) | + | |
| - | | i found it hard to keep up with schoolwork because i was tired (the past 7 days) | ik kon moeilijk bijblijven met mijn werk voor school omdat ik moe was (de afgelopen 7 dagen) | + | |
| - | | i had difficulty finishing things because i was too tired (the past 7 days) | ik had moeite om dingen af te maken omdat ik te moe was (de afgelopen 7 dagen) | + | |
| - | | i had difficulty starting things because i was too tired (the past 7 days) | ik had moeite om met dingen te beginnen omdat ik te moe was (de afgelopen 7 dagen) | + | |
| - | | i was so tired that i found it difficult to pay attention (the past 7 days) | ik was zo moe dat ik moeite had om op te letten (de afgelopen 7 dagen) | + | |
| - | | i was too tired to engage in sports or exercise (the past 7 days) | ik was te moe om te sporten of te bewegen (de afgelopen 7 dagen) | + | |
| - | | i was too tired to engage in outdoor activities (the past 7 days) | ik was te moe om buiten dingen te doen (de afgelopen 7 dagen) | + | |
| - | | i was too tired to enjoy the things i like to do (the past 7 days) | ik was te moe om te genieten van de dingen die ik leuk vind om te doen (de afgelopen 7 dagen) | + | |
| - | | their tiredness made it difficult for my child to play or to get away with their friends as much as they would have liked (the past 7 days) | door moeheid was het moeilijk voor mijn kind om zo veel als hij/zij zou willen te spelen of weg te gaan met vrienden of vriendinnen (de afgelopen 7 dagen) | + | |
| - | | my child felt weak (the past 7 days) | mijn kind voelde zich zwak (de afgelopen 7 dagen) | + | |
| - | | my child tired easily (the past 7 days) | mijn kind werd gauw moe (de afgelopen 7 dagen) | + | |
| - | | my child found it hard to keep up with schoolwork because they were tired (the past 7 days) | mijn kind kon moeilijk bijblijven met werk voor school omdat hij/zij moe was (de afgelopen 7 dagen) | + | |
| - | | my child had difficulty finishing things because they were too tired (the past 7 days) | mijn kind had moeite om dingen af te maken omdat hij/zij te moe was (de afgelopen 7 dagen) | + | |
| - | | my child had difficulty starting on things because they were too tired (the past 7 days) | mijn kind had moeite om met dingen te beginnen omdat hij/zij te moe was (de afgelopen 7 dagen) | + | |
| - | | my child was so tired that they had trouble paying attention (the past 7 days) | mijn kind was zo moe dat hij/zij moeite had om op te letten (de afgelopen 7 dagen) | + | |
| - | | my child was too tired to engage in sports or exercise (the past 7 days) | mijn kind was te moe om te sporten of te bewegen (de afgelopen 7 dagen) | + | |
| - | | my child was too tired to engage in outdoor activities (the past 7 days) | mijn kind was te moe om buiten dingen te doen (de afgelopen 7 dagen) | + | |
| - | | my child was too tired to enjoy the things they liked doing (the past 7 days) | mijn kind was te moe om te genieten van de dingen die hij/zij leuk vindt om te doen (de afgelopen 7 dagen) | + | |
| - | | i felt accepted by other children of my age (the past 7 days) | ik voelde me geaccepteerd door andere kinderen van mijn leeftijd (de afgelopen 7 dagen) | + | |
| - | | i was able to rely on my friends (the past 7 days) | ik kon op mijn vrienden en vriendinnen rekenen (de afgelopen 7 dagen) | + | |
| - | | i was able to make friends easily (the past 7 days) | ik kon makkelijk vrienden of vriendinnen maken (de afgelopen 7 dagen) | + | |
| - | | my friends and i help each other (the past 7 days) | mijn vrienden en vriendinnen en ik hielpen elkaar (de afgelopen 7 dagen) | + | |
| - | | other children wanted to be my friend (the past 7 days) | andere kinderen wilden mijn vriend of vriendin zijn (de afgelopen 7 dagen) | + | |
| - | | other children wanted to be with me (the past 7 days) | andere kinderen wilden bij me zijn (de afgelopen 7 dagen) | + | |
| - | | other children wanted to talk to me (the past 7 days) | andere kinderen wilden met me praten (de afgelopen 7 dagen) | + | |
| - | | i could talk to my friends about anything (the past 7 days) | ik kon over alles praten met mijn vrienden of vriendinnen (de afgelopen 7 dagen) | + | |
| - | | my child felt accepted by other children of the same age (the past 7 days) | mijn kind voelde zich geaccepteerd door andere kinderen van zijn/haar leeftijd (de afgelopen 7 dagen) | + | |
| - | | my child could count on their friends (the past 7 days) | mijn kind kon op zijn/haar vrienden en vriendinnen rekenen (de afgelopen 7 dagen) | + | |
| - | | my child was able to make friends easily (the past 7 days) | mijn kind kon makkelijk vrienden of vriendinnen maken (de afgelopen 7 dagen) | + | |
| - | | my child and their friends helped each other (the past 7 days) | mijn kind en zijn/haar vrienden en vriendinnen hielpen elkaar (de afgelopen 7 dagen) | + | |
| - | | other children wanted to be my child’s friend (the past 7 days) | andere kinderen wilden vriend of vriendin zijn met mijn kind (de afgelopen 7 dagen) | + | |
| - | | other children wanted to be with my child (the past 7 days) | andere kinderen wilden bij mijn kind zijn (de afgelopen 7 dagen) | + | |
| - | | other children wanted to talk to my child (the past 7 days) | andere kinderen wilden met mijn kind praten (de afgelopen 7 dagen) | + | |
| - | | other children wanted to play with my child (the past 7 days) | andere kinderen wilden met mijn kind spelen (de afgelopen 7 dagen) | + | |
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