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Lifelines participants were asked the following questions about their experiences with cancer (section: Diseases & symptoms).
Note that self-reported data on cancer (free text) is not freely available due to the risk of identifying participants. The answers are coded, and the codes will become available soon.
Also note that it is possible to link Lifelines data to PALGA and IKNL cancer registries.
Some statistics on the self-reported prevalence and incidence of cancer in the Lifelines cohort can be found here.
Questions English | Questions Dutch | Code | Variable | Assessment | Age |
Do you have cancer or have you had cancer? | Hebt u kanker of hebt u kanker gehad? | cancer_lifetime_adu_q_1 | HEALTH16A | 1A NEXT | 18+ |
If you have (had) cancer, what type of cancer? | Wat voor kanker? | cancer_type_adu_q_1 | HEALTH16B | 1A NEXT | 18+ |
If you have (had) cancer, how old were you when you got cancer? | Hoe oud was u toen u voor het eerst kanker kreeg? | cancer_startage_adu_q_1 | HEALTH16C | 1A | 18+ |
If you have had cancer, were you cured from cancer? | Bent u genezen verklaard?/ Hebt u kanker of hebt u kanker gehad? | cancer_cured_adu_q_1 | HEALTH16D | 1A | 18+ |
Did the health problems listed below start since the last time you filled in the LifeLines questionnaire? | Hebt u onderstaande gezondheidsproblemen gekregens sinds de vorige keer dat u een lifelines vragenlijst invulde? | ||||
Cancer | Kanker | cancer_followup_adu_q_1 | HEALTH100C | 1B 1C 2A | 18+ |
Cancer type: | Soort kanker: | cancertype_followup_adu_q_1 | HEALTH100C1 | 1B 1C | 18+ |
Colon cancer | Darmkanker | coloncancer_followup_adu_q_1 | HEALTH100C2 | 2A | 18+ |
Lung cancer | Longkanker | lungcancer_followup_adu_q_1 | HEALTH100C3 | 2A | 18+ |
Skin cancer | Huidkanker | skincancer_followup_adu_q_1 | HEALTH100C4 | 2A | 18+ |
Brain tumour | Hersentumor | braintumour_followup_adu_q_1 | HEALTH100C5 | 2A | 18+ |
Bone cancer | Botkanker | bonecancer_followup_adu_q_1 | HEALTH100C6 | 2A | 18+ |
Breast cancer | Borstkanker | breastcancer_followup_adu_q_1 | HEALTH100C7 | 1C 2A | 18+ |
Prostate cancer | Prostaatkanker | prostatecancer_followup_adu_q_1 | HEALTH100C8 | 2A | 18+ |
Other type of cancer: | Andere vorm van kanker nl: | othercancer_followup_adu_q_1 | HEALTH100C9 | 2A | 18+ |
A large subcohort of adult female participants answered more detailed questions on this topic in the context of an additional questionnaire on women's reproductive health (ROAQ).
Questions English | Questions Dutch | Variable | Assessment | Age |
Kanker/ Is er ooit één van de volgende aandoeningen bij u vastgesteld of hebt u onderstaande klachten? | HEALTHA10 | ROAQ | 18+ | |
Op welke leeftijd of in welk jaar werd kanker bij u vastgesteld of de klachten ten gevolge van deze ziekte? | HEALTHA10_1/A/B | ROAQ | 18+ | |
Welke behandelingen hebt u gekregen om de kanker te bestrijden? | ||||
Chemotherapie | HEALTHA10CH | ROAQ | 18+ | |
Operatie | HEALTHA10OP | ROAQ | 18+ | |
Bestraling | HEALTHA10ST | ROAQ | 18+ | |
Geen van bovenstaande | HEALTHA10GB | ROAQ | 18+ |