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Cancer

Lifelines participants were asked the following questions about their experiences with cancer (section: Diseases & symptoms).
Note that self-reported data on cancer (free text) is not freely available due to the risk of identifying participants. The answers are coded, and the codes will become available soon.
Also note that it is possible to link Lifelines data to PALGA and IKNL cancer registries.
Some statistics on the self-reported prevalence and incidence of cancer in the Lifelines cohort can be found here.

Questions English	Questions Dutch	Code	Variable	Assessment	Age
Do you have cancer or have you had cancer?	Hebt u kanker of hebt u kanker gehad?	cancer_lifetime_adu_q_1	HEALTH16A	1A NEXT	18+
What type of cancer?	Wat voor kanker?	cancer_type_adu_q_1	HEALTH16B	1A NEXT	18+
How old were you when you got cancer?	Hoe oud was u toen u voor het eerst kanker kreeg?	cancer_startage_adu_q_1	HEALTH16C	1A	18+
Were you cured from cancer? / Do you have cancer or have you had cancer?	Bent u genezen verklaard?/ Hebt u kanker of hebt u kanker gehad?	cancer_cured_adu_q_1	HEALTH16D	1A proxy	18+
Cancer / Have you (had) one of the following chronic conditions?	Kanker / Hebt u één van de volgende chronische aandoeningen (gehad)?	cancer_presence_adu_q_2	HEALTH16A[P]	Proxy	18+
Cancer since year: / Have you (had) one of the following chronic conditions?	Kanker sinds jaar: / Hebt u één van de volgende chronische aandoeningen (gehad)?	cancer_presence_adu_q_2_a	HEALTH_16YR	Proxy	18+
Type of cancer: / Have you (had) one of the following chronic conditions?	Vorm van kanker: / Hebt u één van de volgende chronische aandoeningen (gehad)?	cancer_type_adu_q_2	HEALTH16B[P]	Proxy	18+
Did the health problems listed below start since the last time you filled in the LifeLines questionnaire?	Hebt u onderstaande gezondheidsproblemen gekregens sinds de vorige keer dat u een lifelines vragenlijst invulde?
Cancer	Kanker	cancer_followup_adu_q_1	HEALTH100C	1B 1C 2A 3A	18+
Cancer type:	Soort kanker:	cancertype_followup_adu_q_1	HEALTH100C1	1B 1C	18+
Colon cancer	Darmkanker	coloncancer_followup_adu_q_1	HEALTH100C2	2A 3A	18+
Lung cancer	Longkanker	lungcancer_followup_adu_q_1	HEALTH100C3	2A 3A	18+
Skin cancer	Huidkanker	skincancer_followup_adu_q_1	HEALTH100C4	2A 3A	18+
Brain tumour	Hersentumor	braintumour_followup_adu_q_1	HEALTH100C5	2A 3A	18+
Bone cancer	Botkanker	bonecancer_followup_adu_q_1	HEALTH100C6	2A 3A	18+
Breast cancer	Borstkanker	breastcancer_followup_adu_q_1	HEALTH100C7	1C 2A 3A	18+
Prostate cancer	Prostaatkanker	prostatecancer_followup_adu_q_1	HEALTH100C8	2A 3A	18+
Other type of cancer:	Andere vorm van kanker nl:	othercancer_followup_adu_q_1	HEALTH100C9	2A 3A	18+
Have you ever received a diagnosis of skin cancer?	Hebt u ooit de diagnose huidkanker gekregen?	skincancer_diagnosis_adu_q_1	DERM005	3A	18+
Do you know which type of skin cancer you had?	Weet u welk type huidkanker u hebt gehad? / Hebt u ooit de diagnose huidkanker gekregen?	skincancer_type_adu_q_1	DERM005A	3A	18+
Have you participated in the population screening for cervical cancer (smear test)?	Hebt u deelgenomen aan het bevolkingsonderzoek baarmoederhalskanker (uitstrijkje)?	screentest_cervicalcancer_adu_q_1	PREV14	3A	18+
What was the result of your last screentest for cervical cancer?	Wat was het resultaat van uw laatste bevolkingsonderzoek naar baarmoederhalskanker?	screentest_cervicalcancer_adu_q_1_a	PREV14A	3A	18+
Have you participated in the population screening for breast cancer?	Hebt u deelgenomen aan het bevolkingsonderzoek borstkanker?	screentest_breastcancer_adu_q_1	PREV15	3A	18+
What was the result of your last screentest for breast cancer?	Wat was het resultaat van het onderzoek naar borstkanker?	screentest_breastcancer_adu_q_1_a	PREV15A	3A	18+
Have you participated in the population screening for colon cancer?	Hebt u deelgenomen aan het bevolkingsonderzoek darmkanker?	screentest_coloncancer_adu_q_1	PREV16	3A	18+
What was the result of your last screentest for colon cancer?	Wat was het resultaat van het onderzoek naar darmkanker?	screentest_coloncancer_adu_q_1_a	PREV16A	3A	18+

A large subcohort of adult female participants answered more detailed questions on this topic in the context of an additional questionnaire on women's reproductive health (ROAQ).

Questions English	Questions Dutch	Variable	Assessment	Age
	Kanker/ Is er ooit één van de volgende aandoeningen bij u vastgesteld of hebt u onderstaande klachten?	HEALTHA10	ROAQ	18+
	Op welke leeftijd of in welk jaar werd kanker bij u vastgesteld of de klachten ten gevolge van deze ziekte?	HEALTHA10_1/A/B	ROAQ	18+
	Welke behandelingen hebt u gekregen om de kanker te bestrijden?
	Chemotherapie	HEALTHA10CH	ROAQ	18+
	Operatie	HEALTHA10OP	ROAQ	18+
	Bestraling	HEALTHA10ST	ROAQ	18+
	Geen van bovenstaande	HEALTHA10GB	ROAQ	18+

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